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August 20, 2010 - News of the Week

CAN THERE BE RECOVERY WITHOUT A SAFE PLACE TO LIVE?  (2 articles)


A sharp rise in brutality against homeless individuals, many of them mentally ill, adds new urgency to the longstanding need for safe housing.  

KUDOS to Clint Zweifel, Missouri's state Treasurer, who this week presented state officials with a plan to prioritize mental health housing.    


By Eric Lichtblau
New York Times
August 18, 2010


 

ARTICLE 2:  A PLACE TO CALL HOME -- FOR CLINT ZWEIFEL MENTAL HEALTH HOUSING IS A PRIORITY


By Bob Watson
For the Fulton Sun
August 20, 2010

When the Missouri Housing Development Commission meets this morning, state
Treasurer Clint Zweifel wants its members to approve his plan to direct a third
of the state's annual low-income housing aid to mentally ill Missourians.

"The $127 million investment that I am proposing provides a place to call
home for sons, daughters, moms and dads and military veterans who suffer from
mental illness and are homeless -- or at a very high risk of suffering from
homelessness," Zweifel told reporters in his Capitol office.

"My proposal would provide an estimated 400 homes that would provide safe,
stable housing to help our friends and neighbors get back on their feet, and
fight chronic homelessness right here in Missouri."

The treasurer would couple the new housing with "critical, supportive services that are so important ... that these individuals ultimately need to be healthy and well and thrive," including on-site care, crisis help and case management.

Zweifel said his plan would not require any new spending nor does it mandate
a specific model for developers to follow.

"It's not a one-size-fits-all-approach government mandate," he explained. "It's instead a way to use the best of what Missouri has to offer -- community-based organizations, local governments, state government and businesses really coming together to provide real solutions that deal with the issue of homelessness."

He said several housing commission members already support his idea.

But Housing Commission Chairman Jeffrey Bay told The Associated Press Wednesday that he didn't have enough information about Zweifel's proposal to decide whether to support it -- and he didn't expect Zweifel's idea to be resolved at today's meeting.

"I am not aware that the staff has investigated it adequately and fully to know all of the ramifications of it," Bay said.

NAMI of Missouri supports Zweifel's plan.

"We've seen increases in homelessness in Missouri in the last few years and, with resources being more and more strapped, we just expect that trend to continue," said Cynthia Keele, the group's director. "It's also real important that people with mental illness have stable housing, because how can you recover?

"We know, today, what it takes for people to recover from mental illness and how to help people get back and get back into society. But how can anyone start that process, if they don't have a place to live?"

Keele said some developers already have said they'd be interested in such a project, using tax credits the MHDC already has the authority to give to developers.

Though he promoted his plan at a Wednesday morning news conference, Zweifel sent Bay a letter on July 2 of his request for the commission's vote on his idea.

"This is consistent with the MHDC's commitment to fighting homelessness in Missouri," the treasurer wrote. "Focusing on mental illness and homelessness should be a critical strategic function of the MHDC."

The commission's members include Zweifel, Gov. Jay Nixon, Lt. Gov. Peter Kinder, Attorney General Chris Koster and six Missourians appointed by the governor.

The meeting is set to begin at 9 a.m. today at the Capitol Plaza Hotel.

- End of Article 2 -

Reprinted using Fair Use standard



August  8, 2010 - News of the Week


PEER COUNSELORS CAN SOFTEN AN EMERGENCY ROOM EXPERIENCE

For more information see
Peer Counselors Support Consumers in Emergency Rooms by Phyllis Vine

For people who have psychiatric vulnerabilities, an emergency room visit can be prohibitively traumatic.  An extreme example is the death-by-neglect of Esmin Green, a woman who collapsed and died unnoticed on the floor of a psychiatric waiting room after a 24-hour wait for help.  June 18, 2008, at the Kings County Hospital Center in Brooklyn, New York City.

Psychiatric peer counselors have become a fast-growing source of valuable assistance in programs that provide psychiatric services.  They can also contribute valuable help in emergency rooms.

Phyllis Vine (www.miwatch.org) explores this innovative services model, now expanding nationally, in Peer Counselors Support Consumers in Emergency Rooms

_____________________________________________

Update on Kings County Hospital Psychiatric  Center
Source: NYAPRS Enews, August 10, 2010 

 Following Esmin Green's tragic death in the Kings County Hospital psychiatric emergency room in 2008, a legal settlement prompted New York City's Health and Hospitals Corporation to increasingly hire peer staff in their inpatient and outpatient programs at Kings County and other HHC public hospitals. Here is a promising account of this welcome new direction: Peers Bring Hope To The Mentally Ill  by Erin Durkin, New York Daily News, August 9th, 2010.  



August 1, 2010 - News of the Week

A BRITISH CLINICAL PSYCHOLOGIST MAKES STRONG CASE FOR SHIFT IN PSYCHIATRIC TREATMENT


"Arguing passionately for a future of mental health treatment that focuses as much on patients 
as individuals as on the brain itself, this is a book set to redefine our understanding of the treatment

 of madness in the twenty-first century."   (Quote from book jacket)


Doctoring the Mind: Why Psychiatric Treatments Fail

by Richard P. Bentall

Book Review by Lesley McDowell
Published June 13, 2010 The Independent 

The end of the 20th century saw powerful indictments of the way we treat people with mental-health problems, not from those in the psychiatric profession but from those on the receiving end. Psychiatry's increasing reliance on pharmaceuticals was coming under attack, and a more caring, less drug-dependent way was being advocated by the newer strand of mental-health specialists: clinical psychologists.

One of the many fascinating things that Richard P. Bentall's excellent book flags up is the lack of progress we seem to have made in the past 200 years. Ironically, knowing far more about how the brain works than, say, the 18th-century's William Cullen, or even Freud, seems barely to have improved our ability to treat mental problems. If anything, neuroscience, in emphasising the brain's failures, has advocated a more simplistic approach: a chemical imbalance in the brain? Here, pop a pill. We may no longer chain "mad" people to walls or apply leeches to their skin, but the moment in the early 19th century when more holistic methods were advocated was quickly eclipsed when the emerging study of psychiatry sought to establish itself as a science, and did so by becoming as authoritative as possible.

Many of us may not know about the opposition between psychiatry and clinical psychology, but, given that mental illness is apparently on the increase - "the lifetime risk of suffering from any kind of psychotic disorder may be as high as 3 per cent, [which] means as many as 1.8 million British citizens" we had perhaps better start becoming educated about them. Bentall, a professor of clinical psychology himself, can hardly be the most disinterested commentator on these arguments, but he has produced a lucid and accessible account of a tricky but endlessly absorbing subject.

- End of  book review: Doctoring the Mind: Is Our Current Treatment of Mental Illness Really Any Good? -
- Reprinted using Fair Use Standard -




July 18, 2010 - News of the Week


5 Communities Re-examine Use of Police to Intervene in Mental Health Crises

Source:  Bazelon Center for Mental Health Law
    Press release:  July 6, 2010

ARTICLE:

More frequently, news outlets across the country, like the ones below, are reporting shocking stories about tragic outcomes stemming from police involvement in mental health emergencies. 

·         “Camden County Man Dies After Struggle with Police,” Philadelphia Inquirer 4 May 2010

·         “Autopsy Links Taser to Cardall’s Death,” Salt Lake City Tribune 19 November 2009

 

Recognizing the devastating impact of cyclic arrest, incarceration and hospitalization on people with serious mental illnesses and their communities, the Bazelon Center for Mental Health Law has launched an initiative designed to reduce reliance on local law enforcement to intervene in psychiatric emergencies. The goal of the initiative, called the Performance Improvement Project (PIP), is to enable community mental health systems to take a more active role in preventing the scenarios whereby people with serious mental illnesses are subject to police intervention.

 

Five sites were selected to participate in the Performance Improvement Project--Travis County (Austin), TX, Wayne County (Detroit), MI, Allegheny County (Pittsburgh), PA, Multnomah County (Portland), OR, and Westchester County (White Plains), NY.  The Bazelon Center, with support from the Open Society Institute and others, is the lead organization.  The Bazelon Center will coordinate the initiative and provide partial funding to each project site. 

 

The project relies on local expertise and a systematic process of observation and analysis to track down the “root causes” that leave people with mental illnesses vulnerable to police involvement.  From this information, project sites will be able to uncover service shortcomings, assess social and fiscal costs, and identify any needed systems improvements.  A compilation of findings across sites will reveal structural obstacles faced by public sector providers as they attempt to meet the needs of the most vulnerable people with serious mental illnesses. 


“For too long, we have viewed people with serious mental illnesses cycling through jails and emergency rooms as routine, when this is, in fact, a clear signal of failing public systems,” said Robert Bernstein, executive director of the Bazelon Center for Mental Health Law. 

 

“Although the results of the Performance Improvement Project will lead to better performance by community mental health providers, the greater goal of this initiative is to illuminate barriers to improvement that stem directly from regulations and policy made at various levels,” Bernstein said.

 

“Establishing an engaged, coherent and fully-resourced community mental health system improves outcomes for people with serious mental illnesses, reduces costs, and reduces the burden on law enforcement to serve as the social service safety net,” he added.

 

“This project could represent a giant step forward for community mental health” said Linda Rosenberg, President and CEO of the National Council for Community Behavioral Healthcare.  “Applying a performance improvement model to quantify how policies and practices are actually affecting services makes a lot of sense.  Data from this project can fuel long-needed change,” added Rosenberg.

The five sites selected by the Bazelon Center have a history of making efforts to provide coordinated community services and supports designed to help avert mental health crises that lead to contact with law enforcement.  Each has also demonstrated interest in pursuing policy reforms that support better outcomes for individuals and improved accountability for government investment in mental health and other human services.  

                                                                                 #  #  #

 

The Bazelon Center for Mental Health Law is the leading national legal-advocacy organization representing people with mental disabilities. It promotes laws and policies that can enable people with psychiatric or developmental disabilities to exercise their life choices and access the resources they need to participate fully in their communities.                                                              



June 12, 2010 - News of the Week

NEW JERSEY ADOPTS "HOUSING FIRST" PROGRAM AS COST-SAVING WAY TO HELP MENTALLY ILL HOMELESS INDIVIDUALS
ARTICLE: Community mental health saves lives and tax dollars

Source: The Times
©2010 Times of Trenton
© 2010 NJ.com All Rights Reserved
(from Google Alerts Email)


State budget planners have a daunting task. How do they save tax dollars without throwing to the wolves society's most vulnerable?

One strategy is to invest in more programs like community mental health, which not only pays for itself and returns to the taxpayer $1 billion each year in savings, but also each year improves the quality of life for 500,000 New Jersey residents.

Thirty years ago, the state began investing in community mental health's statewide network of community prevention and treatment programs. These programs replaced high-cost inpatient care as the treatment of choice for those with disabling mental health conditions.

By investing in community mental health programs, the state has reduced the number of public psychiatric beds from 15,000 in 1970 to roughly 2,000 in 2010. Thanks to this 87 percent reduction, the taxpayer avoided a $2 billion price tag in FY 2010 for public psychiatric beds.

Instead, investing in community mental health has allowed the state to finance the entire community treatment system and remaining public psychiatric beds at a combined cost of $1 billion.

In FY 2010 alone, this provided the taxpayer a net savings of $1 billion. Now, multiply that by 20 or 30 years and we get a sense of how much has been saved over the past few decades. So, what will be the impact of the proposed cutbacks in the FY 2011 budget?

Whenever there are community mental health cutbacks, there is always the risk of increased high-cost emergency care, hospitalizations, community incidents, incarcerations, etc. Any cutback to these services is always a high-cost gamble for short-term budget savings (emphasis added).

Instead of cutbacks, the state should focus on applying community mental health's cost-saving strategy to other problems. For example, we should focus on reducing the high cost of homelessness by implementing community mental health's Housing First model throughout New Jersey, as numerous other cities and states have done.

Housing First is a triumph of common sense. It looks first to correct the homeless person's housing problem and then address the other problems that have contributed to homelessness.

Housing First programs provide housing, treatment and 24/7 support to ensure that the formerly chronically homeless stay healthy enough to be good tenants and good neighbors.

Housing First studies have shown that by providing an apartment and community treatment to the chronically homeless with mental illness, we can reduce their use of high-cost services (e.g., emergency room visits, hospitalizations, incarcerations, etc), and thereby reduce the taxpayer's burden.

Greater Trenton Behavioral HealthCare operates the state's first Housing First program. A consortium of government agencies, the Greater Mercer United Way and the Mercer Alliance to End Homelessness jointly funds this pilot project. Researchers from Tufts University provide program evaluation.

Of the 55 chronically homeless adults and families served by the Greater Trenton program since it began 30 months ago, none has been evicted or hospitalized. Although one was incarcerated briefly, he is back in the program and doing well.

These results are better than expected. Most studies found success rates of 70 percent to 90 percent. These studies also found that Housing First not only paid for itself but also produced net savings during the study period of $4,745 per person in Denver, $9,400 per person in Massachusetts, and $8,839 per person in Rhode Island. It is too early to count the savings from the Greater Trenton program, but we are clearly headed in the right direction.

The human cost savings, however, may be even more important. For example, Anthony, age 35, who was homeless for six years, has been in his own apartment for two years for the first time in his life. He has also been in recovery for 18 months from substance use, actively engaged in mental health treatment and working part-time.

After being homeless for 10 years, Marie, age 47, has been a Housing First tenant for 14 months. Although she still uses alcohol, it is much less frequent. She is working with her psychiatrist and housing counselor to find an alternative to drinking to reduce her distress. Also with help from her counselor, she is addressing for the first time post-traumatic stress from early childhood sexual abuse. Marie has returned to photography and has had several shows at local galleries. She says this is the first time she has felt happy and has hope for her future.

Investing in community mental health helps people like Anthony and Marie recover lost hope and get a second chance. Such investments save tax dollars and solve community problems by saving lives.

Cutbacks and over-regulation of community providers weaken their cost-saving capacity and ultimately lead to hospitalization, incarceration and other higher cost outcomes.

Rather than whittle away at community mental health's capacity to reduce the taxpayer's burden, let's continue to invest in what works and focus budget reductions on what does not.

End of Article

April 18, 2010 - News of the Week


HOUSING WORKS!
ARTICLE:
Graying in a Home, Not an Institution
by Michael Winerip
New York Times, April 18, 2010

____________________


GRAYING IN A HOME, NOT AN INSTITUTION
By Michael Winerip


BALDWIN, N.Y.

SVETLANA GOMELSKY, 61, who has schizophrenia, is the beneficiary of one of the quietest, least-heralded social revolutions of her generation.

Starting at about 18, she began hearing voices. "The first time, I thought it was an accident," she said. "They went away." She married, had two children, lived in the Long Island suburb of Lawrence and worked as a secretary at a Hebrew school. But eventually the voices returned, growing more intrusive. "I got scared," she said. "Not only was I hearing voices, I could talk to them. I started to feel God gave me these powers because he had a special plan for me."

Her husband divorced her; her children, by then young adults, moved out of the house into an apartment. In 1992, she wound up in a psychiatric hospital for six months. "I couldn't function, I lost my house, all these bad things happened to me," she said.

But her timing was lucky. By then, New York State had taken notice of all the mentally ill being discharged from hospitals and winding up homeless on the streets, and was paying for the first supervised community residences and apartment programs. Ms. Gomelsky got a place on a quiet suburban street, in a new group home of 10 residents that had 24-hour supervision, oversaw her medications, provided therapy and job training.

In the 18 years since, there have been setbacks, but many more gains. She has moved to a subsidized apartment where a caseworker visits just once a month. She works 20 hours a week as an office clerk. Sweetest of all, three days a week, she's able to baby-sit her three grandchildren, ages 10, 9 and 2, so her daughter can work.

There is no miracle here. Ms. Gomelsky's schizophrenia has not gone away, nor have the voices stopped, even with meds. "I do find if I'm busy, I hear them less," she said. "If they become a problem I speak to my therapist and psychiatrist and they adjust my meds, so I can manage."

Ms. Gomelsky's is the first generation with serious mental illness to largely escape the state hospitals. In the 1950s, there were 93,000 long-term patients in New York mental hospitals, some who had lived there for decades. Today there are 4,000.

By 1978, New York had financed just 308 group-home and apartment beds for the mentally ill in the entire state; today, there are about 30,000.

When Marjorie Vezer, 57, executive director of South Shore Association for Independent Living — the nonprofit agency that houses Ms. Gomelsky — opened her first group home in the late 1980s, she said, "we were looking for young people, in the 18 to 35
range."

She found them. They've largely stayed and now, as they gray, they dominate state-financed community housing. In 1999, 56 percent of the state's group-home and apartment population was in the 41 to 70 age range; today, 72 percent is.

The 18- to 30-year-olds now make up just 11 percent of the state total.

Twenty-five years ago, Ms. Vezer's group-home counselors kept an eye out for sexual promiscuity issues, drug and alcohol abuse, fighting. Now the added worry is residents' health: hypertension, heart issues, diabetes, obesity. Ms. Vezer recently hired her agency's first two nurses.

Between the psychiatric disorders — 70 percent of the 308 people Ms. Vezer houses have schizophrenia — and middle-age problems like high cholesterol, some residents can take 20 pills a day.

One reason more young adults are not entering the housing system is that state funds have failed to keep pace with the need.

The state has not done as well for the mentally ill as it has for the developmentally disabled. Though community beds paid for by the State Office of Mental Retardation and Developmental Disabilities cost two to three times as much as beds for the mentally ill — because of higher supervision levels — New York has financed 7,000 more beds for that population.

We have very different attitudes about the two groups. In the late 1990s, when 26 developmentally disabled adults were found living in homeless shelters in Westchester, there was outrage. Indeed, Gov. George E. Pataki was so embarrassed by the press reports, he created an extra housing program for the developmentally disabled.

There is no similar outrage about homeless shelters being full of people with schizophrenia. Patrick Markee of the Coalition for the Homeless said surveys indicate about half the 7,900 people in New York City's single-adult shelter system have serious mental illness.

That, of course, is the story we know too well: the ragged people on the corner talking to themselves.

The story we hardly know at all, because it's hidden from view, is the 30,000 seriously mentally ill New Yorkers like Dennis and Pat Siegel (shown in the photo) who live in quality state-financed housing. Both have schizophrenia, both have been hospitalized for long stretches and both have been homeless.

In the years before the couple met, Mrs. Siegel, 62, worked as a secretary. When her illness flared, she left her parents' home and lived in her car on Long Island. "I stayed in a parking lot in East Meadow," she said. "I'd walk to a soup kitchen in Hempstead for lunch — they'd let you take extra rolls, so that was my dinner." After selling the car, she said, she slept outside. "In Garden City, by the fancy stores, I stayed in a bush." Asked how long, Mrs. Siegel said, "I didn't have a calendar, I was day by day."

The schizophrenia first hit Mr. Siegel, who's now 60, when he was in his 20s and working as a salesman. After that, he said, he couldn't hold a job. "I tried, please put that in the article," he said. "King Kullen, Petland, a Shell station, cleaning."

He was hospitalized repeatedly and tried killing himself twice. Mostly he lived in illegal rentals. "I stayed in a little house in Elmont," he said. "There was a different family on each floor, and I was in the basement."

In 1997, he moved into an apartment run by Ms. Vezer's agency. He saw a caseworker regularly, and his hospitalizations went way down. "I haven't been hospitalized in five years," he said.

That's a big savings for taxpayers. It costs $250,000 for a year at a state hospital; $30,000 for a month on the psychiatric unit of a community hospital; and $14,500 for a year in the cheery apartment where Mr. Siegel now lives.

He met his future wife at a social club paid for by a mental health agency.

"Dennis said, 'Here's my number, give me a call,' " Mrs. Siegel said.

"I played it cool," Mr. Siegel said.

Once a month they went out to dinner. "One day Dennis said to me, 'Oh my God, do you want to marry me?' "

"That's what I did," Mr. Siegel said.

She borrowed $200 to buy a dress along with five pizzas, chips and sodas for 20 friends at the boardinghouse where she lived. They were married Dec. 6, 1999, at Long Beach City Hall.

Within a month, the agency found another place for Mr. Siegel's male roommate, and Mrs. Siegel moved in.

Their apartment is a sunny one-bedroom with lots of windows, on the second floor of a house, along a quiet side street in Valley Stream.

"You can walk to the railroad station," Mr. Siegel said. "The bus stop's a block away."

"Pat keeps it spotless," he added. "She scrubs the toilets with bleach, the floors. Cooks meals for me."

"Look at this belly," Mrs. Siegel said. "He's gained weight."

"I don't really know what else to say, except thanks," Mr. Siegel said. "What do you like about the place, Pat?"

"Exactly what you said, honey," Mrs. Siegel said.

End of Article

E-mail: generationb@nytimes.com

Reprinted using Fair Use protection



April 11, 2010 - News of the Week

IT CAN BE DONE! TORONTO LAUNCHES A MODEL HOUSING PLAN

ARTICLE: Toronto Hospital's 'Urban Village' Integrates Mentally Ill Patients, The Canadian Press, April 5, 2010

By Sheryl Ubelacker
Canadian Press 
April 5, 2010

 
TORONTO — Originally erected in 1850 as the Ontario Lunatic Asylum and enclosed on all sides by a solid brick wall, Canada's largest hospital for treating mental illness is undergoing a radical transformation that could make it a model for the rest of the country.
 
The Centre for Addiction and Mental Health is tearing down walls both literally and figuratively, revamping its 10.9-hectare site in Toronto to create an urban village that will integrate its buildings and the people it cares for into the surrounding neighbourhood.
 
"It reflects changes in the understanding of what's necessary for people who have mental illnesses and addictions to live their best life, to fulfil their potential in life, which in some cases can be limited by their illness," says Dr. Catherine Zahn, president and CEO of CAMH.
 
That means helping a person struggling with a mental illness and-or addiction to reintegrate into society - to return to their home, hold down a job, to be a good family member and friend, says Zahn.
 
"And the best way to do that is when and if an individual who has mental illness is capable of it, to start right away, to have them in an environment that most closely resembles the real world."
 
The multi-phase process of overhauling the nine-square-block CAMH site in the city's vibrant Queen Street West neighbourhood began two years ago with the building of four "alternative milieu" units that provide transitional housing for in-patients prior to discharge.
 
On Tuesday, the hospital breaks ground for three buildings that comprise the next phase of its rebuild, among them a 60-bed Intergenerational Wellness Centre for youth and geriatric patients that includes Canada's first in-patient facilities for teens with both mental illness and addictions.

But the revamp isn't just about new buildings.
 
New streets wend their way through the site, connecting and blending CAMH with the neighbourhood's local cafes, businesses and residences.
 
"The idea is that there is very little value in closing people with mental illness off from the community and vice versa," says Zahn.
 
"The opening up to the community from the perspective of our patients just carries that metaphor forward that to fully recover they have to be rehabilitated, that the community has to be part of their healing process."
 
Zahn says the integrated CAMH campus, dotted with plenty of green space, trees and gardens, is meant to help erase the stigma that isolates people suffering from such illnesses as schizophrenia, bipolar disorder or severe depression.
 
"It includes transforming attitudes about people with mental illness, so reducing stigma but also reducing prejudice," she says. "The unknown is always a stimulus for prejudice. So getting to know the organization better, opening it up, is an important stimulus to reducing prejudice and subsequently reducing discrimination."
 
Angela Foot has already felt the power of that inclusiveness.
 
In early 2006, she was referred to CAMH because she had hit her "own personal rock bottom" and was suicidal. Her diagnosis of bipolar disorder finally explained the many years she had struggled with violent mood swings - alternating between long periods of mania when she couldn't sleep and then weeks to months plunged in the depths of depression - that destroyed relationships and finally left her unable to work.
 
As an out-patient, Foot was prescribed a number of treatments, including various group therapy sessions that took place in one of CAMH's institutional buildings. But recovery was slow, she says.
 
In December 2008, she was admitted to one of the new alternative milieu units, a street-front apartment-like building that provides a home-like, stepping-stone residence for patients before discharge back into the community.
 
"It was so different than what my experience was in the day-treatment program, which is in one of the older buildings," says Foot, 36. "Because those four new buildings are on the street, with sidewalks and trees and benches and so on, it feels like you're a part of the community and a part of the outside world."
 
Designed to be airy and light-filled, each floor includes a shared kitchen, dining area and TV lounge, with individual rooms for residents fitted out with private bathrooms and showers.
 
The living quarters are a long way from the outdated notion of a huge room lined up with beds, says Foot. "You have this sense of dignity, I guess, over taking control of your illness but not feeling like you're a complete freak show."
 
"If you create an environment that is not so isolating, it may in fact speed up your recovery or enable you to take better advantage of all of the treatments that are available to you," says Foot, who lived in the unit for a month before being discharged back home as an out-patient.
 
"Had I at that point been in the new building ... my experience could have been very different."
 
Alice Liang of Montgomery Sisam Architects Inc., part of a consortium of architectural firms hired to refine the master plan and erect the first phases of the rebuild, says brick, residential-type windows and other materials were used to make the new buildings harmonize with existing structures in the neighbourhood.
 
The designs also incorporate energy-saving elements such as green roofs and are meant to be sustainable, she says. "Thirty years from now, if the hospital no longer needs those buildings they can easily be converted into private residences or apartments."
 
"The important aspect to really stress from our architectural perspective is that we took this on not to create a monumental building (like) the ROM museum or the (Ontario) Art Gallery," Liang says of the recently redesigned iconic Toronto landmarks. "We really see these buildings as good solid designs that are good neighbours that really work with the community and support the whole notion of integration."
 
But CAMH didn't rely only on professionals when deciding how to make its buildings more patient-friendly. It went right to the source.
 
Alex Bustos, a 20-year-old out-patient who's been receiving therapy for depression and substance abuse since early 2009, says he and other young people at CAMH were consulted about what would make "kids of our age feel most comfortable, to feel like they're at home ... not like an institution, which is kind of scary and cold."
 
That included everything from room design and paint colour to the type of flooring and furniture style, says Bustos, who has been free of his marijuana habit and alcohol addiction for three months.
 
Bustos, who will soon get his high school diploma and is considering going into social work, calls his treatment and recovery at
CAMH "awesome."

"There's more hope in my life, more purpose to live. Before I was struggling, so I felt hopeless. Life is good."
 
Of course, notes Zahn, CAMH is a hospital and will still provide long-term care, as it has all along.
 
"We have patients here who are very, very ill and they do require secure environments ... And there's no intention to diminish the care of people who require that type of an environment."
 
It will take another five to 10 years before the entire campus has been completely transformed to conform to the urban village vision, she says.
 
But as antiquated structures are demolished to make way for the new, the blurring of lines between those being treated for mental illness and the rest of the world has already begun, says Zahn, quoting one patient's reaction.
 
"Finally we can see out - and they can see us."
 
ARTICLE:
http://www.google.com/hostednews/canadianpress/article/ALeqM5h5jdcPUqHOnxJ7VFEsSpvKwpcacw
 

Reprinted Using Fair Use Standard

 

March 21, 2010 - News of the Week

DOES THE TREATMENT ADVOCACY CENTER HELP OR HARM?


See 'more information' (below) for A Factoid in the Making


Kendra's Law, New York's controversial statute permitting compulsory medication of psychiatric outpatients, is due to expire at the end of June. Already we are seeing efforts to make it permanent by the law's chief proponent, the Treatment Advocacy Center in Arlington, VA. Recent quotes by key spokespeople suggest that a new wave of fearmongering may be in the making.
Seventeen years ago, D.J. Jaffe, an advertising executive, advised mental health advocates that "from a marketing perspective it may be necessary to capitalize on violence" to pass laws compelling psychiatric outpatients to take psychotropic medication. Soon Jaffe joined forces with Dr. E. Fuller Torrey, a psychiatrist who shared Jaffe's compulsory medication agenda. Thus was launched an intensive public relations campaign linking mental illness with violence. Since then, factoid-laced, sensationalistic articles, op-eds and television features have appeared with depressing frequency in the national media. For an example, see "Will The Damage Be Doubled?"

What's a financially-strapped advocacy movement to do? Advocates' protests requesting fairness fall on deaf ears at "60 MINUTES," "48 HOURS," "The Washington Post," and other national media. For nearly 20 years the Torrey/Jaffe team, unimpeded, has relied on a scare strategy to win public support for compulsory medication.

The fact is that there are no violence studies that focus on people with untreated schizophrenia and bipolar disorders, the Torrey/Jaffe team's target population. The Treatment Advocacy Center copes with this problem by lifting phrases out of context from work by others. The result is self-serving misinformation with respectable citations.

Does this twisted form of advocacy help or harm those it purports to assist ? Could this be a reason researchers are finding the public to be less tolerant toward people with psychiatric disabilities and decreasingly willing to accept housing and community support programs? See "Study Finds Fear Tactics Win Public Support for Coercion"

Below are examples of *factoids circulated by the Treatment Advocacy Center. They are available online in the archive of the Anti-Stigma Home Page, http://www.stigmanet.org

  • The Torrey/Jaffe team wrongly interpreted conclusions concerning stigma in the Surgeon General's Report on Mental Health (1999). See "Torrey Twists Meaning of Surgeon General's Report"

  • The Torrey/Jaffe team distorted research concerning the effect of the news media on public opinion. See "Selective Reporting of News Skews Views" and "The Most Important Cause of Stigma?"

  • The Torrey/Jaffe team selectively reported violence estimates (in research based on a study investigating medication effectiveness) to inflate the result. See Treatment Advocacy Center Reduces Research on Violence to a Stigmatizing Soundbite

  • The Torrey/Jaffe team added incorrect interpretations to findings of a U.S. Department of Justice report on homicide. See "Just the Facts, Please!"

  • The Torrey/Jaffe team summarized research involving 49 subway pushings and attempted pushings over a 17-year period (1975-1991). The researchers (Martell & Deitz) chose to gather data only on assailants who were psychotic at the time of the offense (20 individuals - 1 of these rejected ). Torrey's 1-sentence summary of this study is nonsensical: "Among 20 individuals who pushed or tried to push another person in front of the subway in New York, all except one was severely mentally ill and offered motives directly related to their untreated psychotic symptoms." Who would guess the study found that such pushings occur once or twice a year in a city of (then) 7 million people?

  • The Torrey/Jaffe team mislabeled Andrew Goldstein (of Kendra's Law fame) a "treatment refuser" even after his psychiatric records proved he had repeatedly tried to get treatment from a downsizing mental health system. See "More About Kendra's Law"

  • Four prominent and respected research organizations, The Lewin Group, the U. S. Department of Justice, the National Advisory Mental Health Council (NIMH), and the MacArthur Foundation on Mental Health and the Law have confirmed that their work does not support findings attributed to them by the Torrey team. See "Just the Facts, Please!" and "Ten Top Stories of 2007 Continue Fearmongering"
     
  • As the Kendra's Law expiration date draws near (June, 2010), the Torrey/Jaffe team has doubled its earlier 5% estimate of homicides committed by people with "untreated schizophrenia and bipolor disorders" to a frightening 10% of all homicides in the U.S. The doubled (10%) figure, however, misuses research and homicide numbers from data spanning 1990-2002.
    See Dr. Torrey Doubles Bogus Homicide Estimate


  • *Editor's note: "A factoid is a questionable or spurious - unverified, incorrect, or fabricated - statement formed and asserted as a fact but with no veracity. The word appears in the Oxford English Dictionary as 'something which becomes accepted as fact, although it may not be true.' "
    Quote is from Wikipedia, the free encyclopedia.


    MORE INFORMATION

    A FACTOID IN THE MAKING


    A quote from Dr. Torrey

    In an ABC News interview last week, Dr. Torrey stated: "The most recent data would suggest that about 10 percent of the homicides in the United States are committed by people who are bipolar or schizophrenia -- when they are not on medication."

    Where's the evidence?

    The Treatment Advocacy Center's most recent briefing paper on violence (updated April 2009) states that Individuals with severe mental illnesses are probably responsible for approximately 10 percent of homicides in the United States. They cite the following study.

    "In Indiana, researchers examined the records of 518 individuals in prison who had been convicted of homicide between 1990 and 2002. Among the 518, 53 (or 10.2 percent) had been diagnosed with schizophrenia (n=27), bipolar disorder (n=12), or other psychotic disorders not associated with drug abuse (n=14). An additional 42 individuals had been diagnosed with mania or major depressive disorder. It should be emphasized that the study included only those who had been sentenced to prison and did not include those individuals who had committed homicides and were subsequently found to be incompetent to stand trial or not guilty by reason of insanity and therefore sent to a psychiatric facility instead of prison. Thus, the 10.2 percent is an undercount. The authors also noted that 80 percent of the mentally ill individuals who committed homicides had received past psychiatric treatment but that "many of the offenders were not receiving treatment" at the time of the homicide." Matejkowski JC, Cullen SW, Solomon PL. Characteristics of persons with severe mental illness who have been incarcerated for murder. Journal of the American Academy of Psychiatry and the Law 2008;36:74â€"86

    Quoting Dr. Torrey: "In 2007, there were 16,929 homicides in the United States. If individuals with severe psychiatric disorders were responsible for only 10 percent of these, that would be approximately 1,690."

    What's Wrong With This Picture? Torrey is either deceptive or very careless.

    In fact, the research shows there were 27 people with schizophrenia and 12 people with bipolar (39 people). There's no information on their medications status. Torrey's "preventable tragedies" file (2008) showed that homicides sometimes are committed while the assailant is on meds.

    Problem #1:
    Torry has included 14 people with "other psychotic disorders" to bring his total number to 53. He can't do that and then apply the figure to "untreated people with schizophrenia and bipolar."

    Problem #2:
    Torrey can't assume that none of the 39 assailants with schizophrenia and bipolar were on meds. The study confirms this. An analysis I did of his preventable tragedies showed 1/3 of homicide assailants were on meds at the time of the crime. (Also, some years ago in a NYTimes article about rampage killers, of 24 assailants who were prescribed meds 10 were taking them at the time of their rampage murders.) If we speculate that 13 of the 39 assailants could have been on meds, then Torrey's estimate is reduced to 4.4%.

    Problem #3:
    Torrey uses an outdated figure for total homicides in the U.S, 16,929 (2007). The most recent figure is 14,180 (2008). This lowers his already unsubstantiated estimate (1,690) committed annually by people with untreated schizophrenia and bipolar illness


    March 12,  2010 - News of the Week

    ! DR. TORREY DOUBLES HIS BOGUS HOMICIDE ESTIMATE !

    Dr. E. Fuller Torrey's obsession with homicide figures dates back to the 1990s when the media were quick to accept his unsubstantiated estimate that "1,000 homicides are committed annually" by an unmedicated group of people with schizophrenia or bipolar illness. Last week, in a startling claim in an ABC News feature, Torrey raised the estimate to 1,690 annually-- that would be 36 per week every week committed by an extremely small group of individuals.

    Dr. Torrey's new 'discovery' about homicides is clearly as bogus as his previous guesstimates. The new number (10% of all homicides!) doubles his earlier estimate (5%), a figure based on six clippings from the Washington Post and some deceptive tinkering with research done by others. (Note: authors of the studies have confirmed that their work does not support Torrey's conclusions.)

    Torrey's source of the 10% figure, which he projects to 1,690 homicides annually, seems even more shakey. Oddly, Torrey's website file of "Preventable Tragedies" showed only 179 homicides during the peak year of 2003.

    It is alarming that the most visible, articulate, and engaging psychiatrist in the business has successfully promoted facts and figures tailored to suit his narrow agenda of coerced medication. Continuous repeated references to violence by the Treatment Advocacy Center can't fail to affect public attitudes. And this is after all the Torrey/Jaffe team's goal


    March 9, 2010 - News of the Week

            "SCHIZOPHRENIA" AND THE UPCOMING DSM-5
                 

    Now is an ideal time, while the DSM-5 authors are open to public comment on their new version of the APA's diagnostic manual, to recommend change to the much-misused diagnostic term “schizophrenia.” An excellent place to start is Phyllis Vine's “Should the Term Schizophrenia Be Changed?” Phyllis tells of a lively discussion on the topic last summer among 75 psychiatrists and psychologists from 25 countries. Of special interest is work being done outside the United States to find alternatives to a term that all seemed to agree is deeply stigmatizing. Her article's links and video clips add useful information.

    There is no evidence in the APA's Proposed Revisions that “schizophrenia” might be replaced. Quite the contrary, a list of 16 non-specific labels (e.g. “mood disorders”) includes a odd 17th , “schizophrenia and other psychotic disorders.” Why not just “psychotic disorders?” Why include a term that is universally confusing? Why give it special billing over every other psychiatric condition?

    Schizophrenia is a popular choice of people, sometimes even psychiatrists, who rush to judge an assailant on hearing a news report of violence. Schizophrenia is a term lawyers sometimes drop when they are concerned about a future criminal trial. Beyond hope of correction at this point is the popular misuse of schizophrenia to suggest “self-contradiction.”

    Let us hope the confusion surrounding schizophrenia will be given serious attention before the DSM-5 goes to press.

    February 24, 2010 - News of the Week

    IS "SHUTTER ISLAND" A SOURCE OF TOXIC STIGMA?

    For thirty years I've watched the horror-entertainment industry exploit and distort mental illnesses to titillate their audiences. Shutter Island, filmmaker Martin Scorsese's murky new whodunnit, appears to fit this pattern with Leonardo DiCaprio starring as a delusional murderer whose therapy is to investigate the crime he committed.

    Shutter Island is the latest product of a popular trend launched in 1960 by Alfred Hitchcock's "Psycho." This lucrative genre of films, also known as the Hollywood psycho-trough, features slasher movies catering to a huge audience of horror fans and teens. Mental health advocates contend that these pseudo-psychiatric characters fuel the public's misunderstanding of clinical terms such as psychosis and schizophrenia, over-emphasize violence and dangerousness, and erase the distinction between psychotic and psychopathic disorders.

    More than ever, millions of Americans are plagued by the stigma of a psychiatric diagnosis. Studies have found that the public's fear of mental illnesses has intensified since 1950. Suggested causes include Hollywood's exploitation, the emptying of psychiatric hospitals without providing community supports, and a violence-focused public relations campaign initiated in 1993 by proponents of forced psychotropic medication.

    For more than thirty years, mental health advocates have worked hard to reduce the toxic stigma and discrimination that plague millions who have psychiatric labels. Unfortunately, the end is nowhere in sight.
     

    But all is not doom and gloom. See the research results of a middle-school education project described below in the newsletter of a progressive NAMI chapter.

    MORE INFORMATION

  • New York Times review of "Shutter Island" by A. O. Scott, February 19, 2010.

  • "Shutter Island" plot and information posted by Wikipedia

  • Pathways, a NAMI Queens/Nassau Newsletter with five excellent stigma-related articles



  • February 21, 2010 - News of the Week

    RESEARCHERS FIND LITTLE DATA CONCERNING ATTITUDES OF PROFESSIONALS

    Researchers Otto Wahl and Eli Aroesty-Cohen, University of Hartford, after searching for literature concerning the attitudes of mental health professionals toward those they treat, report a serious lack of scientific data on this important topic. Their findings appear in the Journal of Community Psychiatry, Vol. 38 No. 1 (2010), Attitudes of Mental Health Professionals About Mental Illness: A Review of the Recent Literature. View Online at http://www3.interscience.wiley.com/cgi-bin/fulltext/123215869/PDFSTART

    For decades, social scientists have sought to understand the general public's attitudes toward mental illnesses. The result is a significant body of research concerning the public's views of psychiatric disorders; most has been negative. Little scientific data is available, however, about the attitudes of mental health professionals. Yet the attitudes of mental health practitioners are important for good treatment outcomes and good quality of life for their patients. Further, in their roles as educators and members of their communities, professionals' views shape the opinions of future practitioners and other influential community members. Not least, the growing emphasis on recovery-oriented psychiatric programs calls for mental health professionals to understand and adapt if need be to those programs.

    Researchers Wahl and Cohen focused their study on how psychiatrists, psychologists, and psychiatric nurses view and respond to the people they treat. After a comprehensive worldwide search, the researchers found 19 articles published since 2003 that met all their criteria for review. These 19 studies, though few in number, show that professionals' attitudes are a topic of concern around the globe. Coming from Scandinavia, Australia, Japan, Brazil, the U.S., Switzerland, the U.K., Austria, Turkey, Italy, and Singapore, the studies reflect unique cultures and conditions within each country. The researchers note,


    Conclusions about prevailing attitudes in any one country will need a greater number of studies from each country than currently exist. For example, the three studies that employed U.S. samples are hardly sufficient to draw firm conclusions about the attitudes of U.S. Practitioners.


    Overall, Wahl and Cohen's review of the existing literature suggests that while psychiatrists, psychologists, and psychiatric nurses are generally more positive in their attitudes toward people with psychiatric diagnoses than the general public, the researchers found negative attitudes present even in studies with overall positive results.


    The failure to find consistent positive results for the attitudes of mental health professionals and the substantial number of mental health professionals expressing negative views is troubling... It is easy to see how the negative views expressed by many professionals may perpetuate stigma and interfere with practitioners' ability to respond helpfully to their patients' needs or to establish successful therapeutic relationships. It is easy to see how those negative attitudes may provide models for continued public negativity related to mental illness. … At the very least, we may need to include more discussion of attitudes about mental illnesses within our training programs


    Worth special attention: Wahl and Cohen provide a useful guide to the challenges that confront future researchers in a section titled “Implications and Directions for Future Study.” They chart the pitfalls as well as the fruitful directions needed to advance this fledgling field of study. Hopefully, the article will inspire researchers and advocates alike to give the topic its due attention.

    Correspondence to: Otto Wahl, Department of Psychology, University of Hartford, 200 Bloomfield Ave., West Hartford, CT 06117. E-mail:owahl@hartford.edu

    Article published:

    JOURNAL OF COMMUNITY PSYCHOLOGY, Vol. 38, No. 1, 49-62 (2010)

    Published online in Wiley InterScience (www.interscience.wiley.com)

    Copyright 2009 Wiley Periodicals, Inc. DOI: 10.1002/jcop.20351


    January 17, 2010 - News of the Week
     

    GOVERNOR PATERSON, NEW YORK LEGISLATORS: PLEASE RESTORE HIJACKED MENTAL HEALTH FUNDS

    Unfortunately, New York never found the funds to build a promised community support system for people with psychiatric disabilities. Now more than ever, the missing community programs are needed.

    Advocates' hopes soared in 1994 when the hard-won Community Mental Health Reinvestment Act (CMHRA) was signed by Governor Mario Cuomo. The CMHRA promised that savings from a massive shutdown of inpatient psychiatric beds would be used to finance community support programs.

    As reported in 2002, this downsizing of the state's psychiatric beds saved $242 million dollars annually. But most of those savings did not reach the community mental health system as promised.

    The 2002 report states that Governor George E. Pataki, who became Governor in 1995, transferred a large percentage of the psych center savings to the state's general fund. The governor reportedly also found other ways to move mental health funds to his higher priorities. In another blow to hoped-for progress, the governor let the Community Reinvestment Act expire in September 2001 and stonewalled attempts to revive it.

    The severely hobbled system reached meltdown in 1999 when a fatal encounter between a prematurely-discharged hospital patient and an aspiring young writer in a Manhattan subway station sent shockwaves across the state. Albany's leaders responded by quickly passing a new state law permitting coerced community treatment of 'treatment refusers' (Kendra's Law).

    But the essential community programs were rare in 1999 and are still rare today.

    As for the subway assailant, his futile search for psychiatric treatment was revealed in a meticulously-documented cover story in the New York Times Magazine by Michael Winerip (May 23, 1999). Despite this revelation, his 'treatment refuser' label lives on in the press.

    A scathing report of shortchanged funding and system failure was released on October 31, 2002 by Assemlyman Martin A. Luster, who was then the chairman of the State Assembly's mental health committee. It seems that copies of the report, titled Broken Promises, Broken Lives: A Report on the Status of the Mental Health Delivery System New York State, are in no official archive.

    For a single xeroxed copy of the 49-page Luster report, email stigmanet@webtv.net Please include a postal mailing address.

    We urge Governor Paterson, the Legislature, the media, and the public to review this still-relevant report.




    January 4, 2010 - News of the Week
    ARE SHOCK TREATMENT MACHINES SAFE? WILL THE FDA RULE OUT AN EVALUATION?

    The following article comes from a nationwide coalition of mental health consumer/survivor organizations. This Washington-based coalition represents a large population with incomparable experience of electroconvulsive therapy.

    This Friday, January 8, the FDA will decide whether or not to evalaute ECT as required. The advocates urge us to ask the FDA to meet its obligation to review medical devices.

    ARTICLE
    Source: National Coaliton of Mental Health Consumer/Survivor Organizations (NCMHCSO)
    E-mail, January 4, 2010

    The FDA Wants to Declare Electroshock Machines Safe Without a Safety Investigation. 

    TELL THEM NO!


    The Food and Drug Administration is in charge of regulating medical devices just as it does drugs, including the machines used to give Electroshock.

    But it's not doing its job. It has allowed these machines to be used on millions of patients over the past generation without requiring any evidence whatsoever that shock treatment is safe or effective. This is so even though shock machines are Class III -- high risk -- devices, which by law are required to be subjected to thorough clinical trials as thoroughly as new drugs and devices just coming onto the market.

    But because of intense lobbying by the American Psychiatric Association -- which claims the devices are safe but opposes an investigation -- the FDA has disregarded its own law. (For the full story of how shock survivors and other advocates have fought for a scientific safety investigation of Electroshock for the past 25 years, see Linda Andre's new book, Doctors of Deception: What They Don't Want You to Know About Shock Treatment.)

    In April 2009 -- 30 years after it first ruled the devices high-risk and named brain damage and memory loss as risks of the treatment -- the FDA belatedly announced it would call on the manufacturers of the devices to provide evidence of safety and efficacy.

    The deadline for submissions has passed, but the manufacturers have not conducted any clinical trials, claiming they cannot afford them. They simply point to the opinions of shock doctors (including those who have financial interests in companies making Electroshock machines) as evidence that shock is safe.

    [To submit your electronic comment to the FDA, click here.]


    For more information and sample letters, please visit our website: http://www.ncmhcso.org/ect.htm 

    National Coalition of Mental Health Consumer/Survivor Organizations
    1101 15th Street, NW #1212, Washington, DC 20005

    Tel:  877-246-9058
    Email: info@ncmhcso.org
    Website: http://www.ncmhcso.org/

     
    The purpose of the NCMHCSO is to share information that is consistent with our mission and values and that is significant for our constituency. The information above does not constitute an endorsement of any particular organization.
    END OF ARTICLE


    MORE INFORMATION


    Go to
    OTHER CONTACT INFORMATION


    Record a comment by phone:
    1-202-205-5445
    U.S. Dept. of Health & Human Services (oversees FDA)

    Email FDA:
    webmail@oc.fda.gov

    Phone FDA:
    1-888-463-6332

    Write FDA:
    Food & Drug Administration (FDA)
    10903 New Hampshire Ave.
    Silver Spring, MD 20993-0002


    November 1, 2009 - News of the Week
    DECONSTRUCTING TOXIC STIGMA: SURVIVORS OF FORCED PSYCHIATRIC "TREATMENT" SPEAK OUT
    Link: Archived radio program produced and hosted by Anne Barbano with guests Marj Berthold, Nora Jacobson, and Laura Ziegler

    Thanks to TWITTER's spreading-ripple effect, the first Vermont weeky radio program concerning autism and disabilities has found a national audience. The show, "The Next Frontier," is produced and hosted by Anne Barbano (abarbanovt@juno.com), a Burlington mother who excels at empathetic listening.

    Earlier programs on "The Next Frontier" are archived at "Living the Autism Maze."

    This week Barbano introduces a new documentary,
    "Tremors in the System: the help you want or the help you get,". Her guests are the film's co-directors Nora Jacobson and Marj Berthold, and Laura Ziegler. Beginning gently, the hour-long program soon becomes intensely illuminating and thought-provoking. A colorful background enhances the computer screen.

    Enlightening moments occur when least expected, so savor every minute of this moving, stereotype-shattering program.
    Note: The TWITTER link was forwarded to us by Morgan Brown, a long-time advocate, chronicler of homelessness, and a veteran blogger: http://norsehorseshometurf.blogspot.com/ For more links to Morgan's work, GOOGLE 'Morgan Brown Norsehorse'

    October 25, 2009 - News of the Week

    GLENN CLOSE FAMILY HOPES TO DECONSTRUCT AND ELIMINATE "TOXIC" STIGMA

    Bring Change 2 Mind offers encouragement and help: "This is where the misconceptions stop"
    Take a beautiful accomplished celebrity, her close family, a topic often shunned; start a camera rolling with Ron Howard in charge. Then hope for good results.

    In this case, the result is superb. Last week ABC-TV unveiled a candid public service announcement featuring Glenn Close and her sister Jessie followed by an interview on "Good Morning America," where the actress and her family talked freely about their experiences with serious mental illnesses. Click here to view The open discussion is far more compelling than a script could ever be.

    Equally impressive is the Close family's new organization and its website, Bring Change 2 Mind.

    This promising project came into being while Glenn Close was working at Fountain House, a 50-year-old "clubhouse" in New York City (the model is used internationally) that promotes recovery of people who have psychiatric disabilites.

    Soon, we hope, this unprecedented mental health coalition will include prominent ex-patient/survivor organizations. That's the coalition of our dreams.



    October 18, 2009 - News of the Week
    GIFTS OF WISDOM FROM JUDI CHAMBERLIN
    Two Interviews (source: NYAPRS E-NEWS)

    A Talk With Judi Chamberlin;

    Facing Death, A Plea For The Dignity Of Psychiatric Patients

    By Carey Goldberg
    Boston Globe
    March 22, 2009
     
    "NOTHING ABOUT US Without Us."
     
    That is the motto of a grass-roots movement that has carried various names over the last generation, but has always revolved around a single principle: self-determination for people diagnosed with mental illness. Call them psychiatric patients or consumers or survivors, they are fighting together to gain more control over their treatment, and more say in the mental health system overall. And they have won some striking successes in recent years, gaining more input into official policy and creating new jobs for people who, 12-step-style, have recovered from the worst of their illness and now want to help others in crisis.
     
    The mother of that movement, many people would say, is Judi Chamberlin of Arlington.
     
    Chamberlin was hospitalized against her will for depression in 1966, and shocked by how she was treated. Her seminal book, "On Our Own: Patient-Controlled Alternatives to the Mental Health System," came out in 1978, and became a manifesto for the movement. Chamberlin's activism for patients' rights spanned the next 31 years, and evolved with the history of mental health treatment in this country.
     
    At first, in a system that relied heavily on state hospitals, she focused largely on protecting inpatients' basic rights. As "deinstitutionalization" took hold and the hospitals emptied, she focused more on outpatients' needs for services and dignity as well. She also joined forces with activists for people with physical disabilities, and extended her reach internationally, helping push a treaty on disability rights that the United Nations passed in 2006.
     
    Now, at 64, Chamberlin is dying. She has entered hospice care for chronic obstructive pulmonary disease, an incurable lung disease. (It is most commonly caused by cigarettes, but Chamberlin never smoked.) Largely confined to bed, Chamberlin relies on an oxygen mask and works when she feels well enough, including a blog chronicling her experience at judi-lifeasahospicepatient.blogspot.com. Her partner, Marty Federman, figures heroically in the blog, as well as a broad circle of friends, admirers and helpers. True to form, Chamberlin is using her final experience as a patient to argue for reform: The hospice system, she says, with all the autonomy and respect it gives dying people, could serve as a model for psychiatric care.
     
    IDEAS: Psychiatric illnesses can and sometimes do disrupt things like a person's judgment, their perception of reality, their ability to think clearly. So couldn't that possibly, at least sometimes, justify coercion?
     
    CHAMBERLIN: I think the only justification for coercion is where there's actual dangerous, violent or criminal acts. Because we let people do weird, possibly self-destructive things all the time - smoking, drinking, jumping out of airplanes. You go into the mental health system and it sucks you in, and a lot of people who've been in it in the past are willing to suffer rather than go in again.
     
    IDEAS: What was the experience with the mental health system that got you going?
     
    CHAMBERLIN: I originally went voluntarily. I was extremely depressed, and I thought I'd get some help. And after a couple of voluntary hospitalizations, I was sent to state hospital involuntarily and that's when I really realized, "Hey wait a minute, something is very, very wrong here."
     
    IDEAS: And from that experience came . . .
     
    CHAMBERLIN: . . . the fundamental conviction that there's something really wrong here and it needs to be addressed by people who've been through this experience. And of course, this was the '60s - the civil rights movement was underway, the women's movement, the gay liberation movement. And it just seemed to me that we needed that kind of movement for people with our issues.
     
    IDEAS: I'd have to say that women's liberation and gay liberation and civil rights have probably moved a lot farther and are a lot more recognized as legitimate. Why, do you think?
     
    CHAMBERLIN: I think there's still a tremendous amount of social stigma. I think there's a reluctance on the part of people who've had a psychiatric past but have become successful in life to identify themselves publicly because there's no upside to it, there's only a downside, and there are certainly some people who are fairly well known and successful who have, but a lot more who are wanting very much to stay in the closet.
     
    IDEAS: What has been your movement's greatest failure?
     
    CHAMBERLIN: The greatest failure is that we're not seen as an organized group that can speak for ourselves. Lots of times you read an article about disabilities and have someone with cerebral palsy speaking about cerebral palsy or somebody blind talking about being blind, and then you have a family member talking about what it's like to be mentally ill and the interviewer seem to think that's the same thing, but it's not.
     
    IDEAS: What would you highlight as the issue that still most needs to be taken on in our societal life?
     
    CHAMBERLIN: The issue of mental illness and violence. It's so linked together in people's minds and it so distorts what most people with psychiatric disabilities are like. Because while the research shows over and over again that people with psychiatric diagnoses are not more violent than anybody else, that's not what people believe, and it's hammered in all the time with crime shows - that this is what people with psychiatric disabilities are like: They're unpredictably violent in a way that justifies all this forced treatment.
     
    IDEAS: What do you think people need? You've talked in the past about alternative services - mental health services offered noncoercively, often run by people who've been through the experience of psychiatric illness, so they're built on a self-help model.
     
    CHAMBERLIN: When people are in emotional distress and they're asking for help, and a lot of people are - they say "This is awful, I'm in hell" - we want to make sure that help is provided in a way that meets people's self-defined needs. And one thing that's useful is the equivalent of a living will document. "When you see me doing this, try this or don't try this. Because I know from past experience this makes me feel good and this makes me feel horrible."
     
    IDEAS: And you see a parallel between that kind of patient self-determination and hospice care?
     
    CHAMBERLIN: The hospice model puts the patient in the center. What matters is what the patient wants. And then the various people who are the staff - the nurses and social workers and others - are there to support their choices. They're not there to impose their ideas.
     
    IDEAS: I guess the difference may be that hospice amounts to an agreement that the traditional medical system has little left to offer you, whereas in psychiatric treatment, sometimes a clinician might think medicine has a lot to offer while the patient may disagree.
     
    CHAMBERLIN: Right, but again, I think this is the choice part. A lot of people have used psychiatric drugs in ways that have benefited their lives and made the trade-off on some of the side effects because the overall balance is positive. But other people have said, "This drug doesn't work for me." . . . There's a jokey definition of mental illness as doing the same thing 10 times and expecting a different result. I think that can apply to doctors who push the same drug when 10 times it's failed.
     
    Carey Goldberg covers brain science and mental health for the Globe.
     
    http://www.boston.com/bostonglobe/ideas/articles/2009/03/22/a_talk_with_judi_chamberlain?mode=PF


    End of Boston Globe interview

    Reprinted using Fair Use doctrine

    _________________________


     
    INTERVIEW with Judi Chamberlin

    Off Our Backs
    by Leah Harris

    BNET Health Publications
    July/August 2003
     
    lh: How did you come to do the work that you do?
     
    jc: It was all based on my own experiences with the mental health system. I saw that something was very wrong and that people needed to do something about it-especially the people that this was currently happening to. Five years after I got out of the hospital, I found one of the [ex-patient] groups in New York. I found out that there were other people who felt the same way! It just seemed so logical to us that locking people up and depriving them of their basic humanity couldn't possibly be good for anybody.
     
    lh: What issues did you focus on when you first organized over thirty years ago?
     
    jc: It's the same stuff we're doing now. Just trying to get the issues across. That this is about rights, it isn't about "better treatment" or about needing people to take care of us. We're human beings, we're citizens. Why don't we have these rights that supposedly the Constitution and the Bill of Rights talk about? Why does it suddenly not apply to us?
     
    lh: Was there an attempt in the beginning to reach out to the feminist movement?
     
    jc: We tried to reach out to everyone. The early 1970s was a time when all these movements were growing. We made some good contacts with the gay rights movement. But I've always felt that the feminist movement just didn't seem to get it. There are an awful lot of therapists in the movement, and when you talk to women who identify as feminists, and you mention that you're involved with mental health issues, they always mention Phyllis Chesler's book Women and Madness. But Phyllis Chesler's a psychologist, and it's a book in which somebody else talks for us. And this comes from a movement that says that women should speak for themselves, but somehow they think it's OK that a psychologist should talk for women who are "mentally ill" and getting locked up. She gets it so wrong in that book, and it really hurts me when that's considered a feminist classic.
     
    lh: How are women uniquely affected by coercive psychiatry?
     
    jc: Well, there's an assumption that if you have a psychiatric diagnosis, you couldn't possibly be a good mother. There's also a distinction made between women who are distressed and women who are "crazy." You see this in the battered women's' shelters and the crisis centers, that if you're battered and subsequently distressed to an "appropriate" level then that's OK, but if you're distressed beyond that, you get packed off to the mental health system. And that's awful. A long time ago, a group of women at one of the psychiatric survivors' conferences said, "we reject the idea that there's an 'appropriate level for our anger' when we're raped or battered."
     
    lh: Can you talk about the experience of writing On Our Own!
     
    jc: At the time I wrote it, there wasn't anything in print about our experiences. There's a long history of people writing books about their mental health experiences, but certainly not about so-called crazy people getting together and organizing for rights and liberation. I really wanted to get that message out. Over the years, so many people have told me, "that book helped me, it came along and let me know I wasn't alone. I was able to get through what I was going through, and to hook up with other people and get involved." You couldn't ask for more than that as a writer.
     
    lh: It seems that some of the advances made by our movement, however small, are being slowly eroded. Can you speak a little bit more to that?
     
    jc: When I first got involved in the early 70s, the mental health system was very different than it is today. In some ways it was much worse, because you had the long-term institutionalization that exists less today. And in some ways it was much better-because there wasn't this biological determination, this idea that everybody needs to be on drugs forever. And so today you may or may not be in an institution, but you always have to be in "treatment"-engaged with the mental health system in some way. And the mental health system becomes so all-encompassing-providing housing, etc. All the services are provided on the condition of you being "compliant" with the system. And that didn't really exist before.
     
    lh: And I think it gets back to how psychiatry is so all-pervasive in our culture.
     
    jc: Yeah, and how people are so convinced that what we're dealing with here are "brain diseases," and I'm sure if you asked the average person on the street what causes mental illness, they would say that it's a gene, or a chemical imbalance in the brain-all these little slogans that there's no scientific evidence for! The science isn't there to back this up, but the PR certainly is.
     
    lh: Can you tell me a little bit about the Bush administration shutting down the Technical Assistance Centers (TACs) such as the National Empowerment Center?
     
    jc: It's this little tiny federal program-all five TACs-it's all together a $2 million dollar program, which doesn't even compute on a federal level. And here the administration went out of its way to single out this teensy little program. You'd think on a superficial level, we would fit in well with their Republican right-wing agenda-people being self-sufficient and "getting back into society." The initial attempt was to yank our funding right then and there, before the end of fiscal year 2003, and that we fought. And I think the administration saw that we could rally support, and we did rally thousands of phone calls and emails. So we got our funding for the rest of the fiscal year, but with a cut.
     
    lh: Can you say more about what the TACs do?
     
    jc: Three out of five of the TACs are run by consumers and survivors. They provide information, and technical assistance and knowledge, about self-help, about rights, about connecting up with others who have experienced psychiatric abuse. There's so much that you can read about drugs, and institutions, and formal programs. It's much harder to find information about alternatives, information telling you that people can get better, and saying "here we are, people who've been diagnosed with these supposedly lifelong illnesses, who are functioning well." We provide a lot of hope for people that they can do it too. I think it's very important to be out there. There are limits to what TACs can do because they are government-funded. So I think it's important to have the independent groups out there, it's important to have the government-funded groups-it's important to have the whole range.
     
    People need hope. When you get diagnosed with a major mental illness, you're probably also told that you have something wrong with you on a genetic or chemical level, that you have to be on drugs for the rest of your life, that you're probably never really going to get better. That's taking hope away from people. So to provide hope for people-it's just thrilling. All the letters, the phone calls, the emails we get. People didn't know, until they found us, that they can recover, that they can have a good life, that they're not just doomed to being good little mental patients. That's very important.
     
    lh: On the issue of forced psychiatric treatment, what do you say to people who tell of friends or relatives who were forced into treatment and were actually helped by it? The idea that "by criticizing the mental health system, you're discouraging suffering people from seeking help?"
     
    jc: Help is only help if you think it's help. I certainly don't want to take any options away from people. I want to increase people's options. So if somebody has a lot of options, including medication, and they decide that medication's the right one, that's very different from medication being the only option, and it being forced on people. It's a strange kind of reasoning. The one that always gets me is, "if we had been able to get our relative into treatment, she or he wouldn't have killed themselves." That might be a way of soothing your pain, and if you want to soothe your pain that way, OK, but you don't know that.
     
    When I was in the crisis center, I had this real break with reality kind of situation, and after a couple weeks of being in this totally supportive and helpful environment, I was OK. And for years afterwards, I would think, "well, I've had two breakdowns in my life. One was really severe, because it lasted for so long, and one was pretty mild because it was over quickly." Then I realized that if the first time, I had been treated like a human being instead of being hospitalized in this horrible place and treated as less than human, maybe that one would have been over in a couple of weeks too. And again, we are not about trying to take away from people anything that they find helpful, it's about giving people choices and information. Anyone who's opposed to giving people more choices and information. I just don't get it!
     
    lh: What is your vision of an alternative to the mental health system?
     
    jc: There's no single model because different things work for different people. The idea is to give people the space to find what it is that makes them feel better, and to help them get away from what makes them feel worse. And to find ways to enable the things the person wants to happen for her. And ideally there should be multiple settings where that takes place. It could be in your home, if that's the most comfortable place for you, or in someone else's home. I would say probably not in an any kind of institution, because institutions by their nature are very dehumanizing.
     
    lh: What would you say to women who are going through a crisis and don't have access to alternative services?
     
    jc: It's very hard. If someone needs something today, to tell them we're trying to make it possible soon isn't enough. They need to know that so many people have recovered. And that there are so many people who still have symptoms, but they are working, they are going to school, they have a social life, a love life. There's real life out there. That's our biggest unity with the disability movement. Even if you have a disability so severe that you can't move your body, you can still live a full life. And we too may need some extra help or some extra accommodations. But that shouldn't get in the way of living a full life. The idea that you can't have these things unless you're "normal" disenfranchises an awful lot of people. The fact is that people are living their lives and making choices with disabilities of all kinds. As a society, we are so fixated on the idea that there's only one way of doing things. I've learned from my work in the disability movement that people possess an amazing variety of capabilities. The human spirit is what's important.
     
    Leak Harris interviewed Judi Chamberlin, who is a psychiatric survivor and an activist since 1971 in the consumer/survivor/ex-patient movement. She has been a member of the Mental Patients' Liberation Front (MPLF), one of the earliest ex-patient groups, since 1975. MPLF operates the Ruby Rogers Advocacy and Drop-In Center in Somerville, Massachusetts, a self-help center which she helped to found in 1985, and which is run by and for people who have received psychiatric services. Chamberlin is the author of On Our Own: Patient-Controlled Alternatives to the Mental Health System and has also written numerous articles about the movement, self-help, and patients' rights.
     
    Chamberlin is affiliated with the Center for Psychiatric Rehabilitation at Boston University, where she directed studies of people who use ex-patient run self-help groups, and on personal assistance services for people with psychiatric disabilities. She is also a co-founder and associate at the National Empowerment Center, in Lawrence, Massachusetts, a federally-funded technical assistance center which serves the consumer/survivor/ex-patient movement.
     
    http://findarticles.com/p/articles/mi_qa3693/is_200307/ai_n9241237/?tag=content;col1


    End of Interview by Leah Harris

    Reprinted using Fair Use doctrine

    September 20, 2009 - News of the Week
    CUTTING-EDGE CONFERENCE WILL EXPLORE "FIRST BREAK" OPTIONS

    Rethinking Psychiatric Crisis: Alternative Responses to "First Breaks"
    Save this date: November 23 at New York University's Kimmel Center, 60 Washington Square South in Manhattan


    Present-day treatments for psychiatric crises too often traumatize the patient and prolong suffering. The successful use of alternative methods -- mostly outside the U.S. -- has provided a strong catalyst for change.

    These advances will be addressed by a distingished group of practitioners, researchers, and users of such alternatives on November 23, 2009, at New York University's Kimmel Center, 60 Washington Square South, in Manhattan.

    The sponsors of the daylong conference are: The International Network Toward Alternatives and Recovery (INTAR), joined by The Center to Study Recovery in Social Contexts, and Community Access Inc. Supporters include The Empowerment Center, Mental Disability Rights International, and SUNY Downstate Medical Center.

    Don't miss this unique opportunity to learn about treatment alternatives from the field's top experts.
    September 6, 2009 - News of the Week
    COMICS TACKLE PREJUDICE
    Story from BBC NEWS:
    http://news.bbc.co.uk/go/pr/fr/-/2/hi/health/8236577.stm

    Not funny peculiar
    by Patrick Jackson
    BBC News


    These Canadian comedians mean to make you laugh but they are also throwing punchlines at a wall of prejudice.

    They all have mental health problems, and all want to rise above them through laughter.

    David Granirer, who takes medication for depression himself, has been teaching them a course called Stand Up For Mental Health since 2004.

    He now runs classes in Vancouver, Toronto and Ottawa, as well as performing himself.

    Graduates include Alex Winstanley, 23, who mines for jokes the schizophrenia with which he was diagnosed three years ago.

    The two men talked to the
    BBC World Service about passing the microphone to the mentally ill.

    A life of material

    "The more screwed-up and dysfunctional you are, the better your act is going to be" is what David tells his students.

    "Your life is your act."

    Alex, who believes he will probably never stop "hearing voices" but says he has learnt how to deal with it, feels "more alive on stage than in real life".

    "I'd find that after a show, I'd feel so exhilarated I actually wouldn't hear voices for a few days or, if I did, they would be positive," he adds.

    David tells of one woman with schizophrenia who came into class one day wearing a striped blouse.

    "She said 'The voices haven't let me wear stripes for eight years but now that I'm doing comedy, I'm not so afraid of the voices, so I'm wearing stripes*."

    Succeed in stand-up "and you feel like you can do anything", says the teacher.

    Shedding shame

    Alex's Favourite Joke

    "Having schizophrenia, I spend a lot of time being jealous of so-called normal people my age.

    I've always wanted to have a dead-end job and a divorce.

    Sometimes I imagine a so-called normal person being jealous of me: 'Alex, you have, like, a natural gift for, like, hallucinating. I have to drop two hits of acid to get anywhere close. And I'm so, like, lonely, I wish I had voices to keep me company.' "


    David likes to joke that healthy people are more dangerous because, undiagnosed, they arouse less suspicion and, free of medication, are better placed to do damage.

    "Being diagnosed with mental illness is like receiving a black mark on your forehead," he says.

    "It changes the way the whole world sees you and reacts to you.

    "You feel that all of a sudden everyone is watching you, is afraid of you and is wanting to do you harm."

    He speaks from personal experience having first suffered depression in his late teens, before being diagnosed in his mid-30s.

    "I've been in psych wards, had therapy, the whole nine yards," he says.

    Alex likens the stigma to "another illness to deal with at the same time".

    "As people with mental illness, we carry a lot of shame and that shame thrives in the darkness, in secrecy," says his teacher.

    "Then all of a sudden we take these incidents, these things we are really ashamed of and turn them into comedy.

    "We tell a roomful of people, they laugh and applaud, and all of a sudden the shame starts to dissipate, and you think ' I'm not such a bad person after all'."

    Despite the subject matter, the jokes are not all gallows humour, David adds.

    "There is a certain amount, yes, but a lot of it is just really about everyday life because we people with mental illness have lives, go to school, have jobs, have families."

    His students present an "amazing mix".

    "We have every possible diagnosis, age group, socio-economic status," he says.

    Comedy plus medication

    Having taught comedy at a Vancouver college for 10 years, David was inspired to launch the mental health course after occasionally witnessing students make "amazing therapeutic breakthroughs".

    While comedy is not for everyone, with or without mental problems, those who really want to do it, will get something out of it, he believes.

    David says his programme is supported by mental health organisations and he stresses that it does not conflict with psychiatrists' work.

    "We would never say 'This is a replacement for your medication, don't take your medication'," he says.

    He cannot yet offer any empirical evidence of the benefits of stand-up.

    However a study due to take place in a few months' time may lend his form of therapy more weight.

    Alex, meanwhile, is happily hooked on humour.

    "It's my permanent medicine!" he laughs.

    Published: 2009/09/05 00:03:53 GMT © BBC MMIX

    Reprinted using Fair Use doctrine

    September 2, 2009 - News of the Week

    PEERS ENCOURAGE WELLNESS WITH SUPPORT

    ARTICLE forwarded by NYAPRS E-News:

    Peer Wellness Coach - A New Role for Peers
    by Peggy Swarbrick. Peer Connection
    Sept. 2009, MHA in NewJersey


    There is significant concern that people living with mental illness die too young and/or live a poorer quality of life due to significant medical conditions. The Center for Mental Health Services (CMHS) has issued the "10 in 10 Campaign" seeking to lengthen life expectancy by 10 years in a decade.

    In response, the University of Medicine and Dentistry of NJ-School of Health Related Professions (UMDNJ-SHRP) Department of Psychiatric Rehabilitation and Counseling Professions and the Collaborative Support Programs of New Jersey (CSP-NJ) Institute for Wellness and Recovery Initiatives partnered to design a peer wellness coach certificate to address health and wellness needs from a self-management perspective. This training curriculum educates peer wellness coaches.

    These individuals become competent to proactively support peers to promote wellness through addressing high risk behaviors and health risk factors such as smoking, poor illness self-management, nutrition, and infrequent exercise.
     
    This summer, 18 peers in the New Jersey mental health workforce completed the peer wellness coach coursework at the UMDNJ-SHRP in the Department of Psychiatric Rehabilitation and Counseling Professions. This collaborative academic experience included instruction from faculty in the Department of Psychiatric Rehabilitation, Nutritional Sciences, Allied Dental Education, Rehabilitation, and Movement Sciences along staff from CSP-NJ. The coursework was intense, but the students bonded through the shared experience of learning many new skills that could empower them to empower others in pursuit of wellness.
     
    The following are some student responses:

    Louis Blicharz, CPRP, CSP-NJ:
    "I am proud to have taken the Peer Wellness Certification Course with so many dedicated people. It was an intense 8 weeks, but everyone really bonded and supported each other. I believe that this is an indication of the caliber of the Wellness Coaches who will be going forth to serve the people in the community. I personally have battled with mental illness for most of my life. I hope to use my personal experience, combined with the knowledge I have gained from this training, to help promote better health combined with increased longevity and a better quality of life for my peers".

    Robin Weiss, CPRP
    "I think that for the consumers/clients who take advantage of this new service, they will find coaching to be a fun and effective way to accomplish wellness goals that they couldn't previously achieve on their own. The excitement and enthusiasm we have about the coaching method/technique is sure to communicate hope and enthusiasm".

    Lori J. Bell, Certified W.R.A.P. Facilitator and Trainer:
    "I feel this training directed me to go from a peer 'counselor' approach, which is a more medical model, to a 'coaching' approach, which leaves accountability up to the individual themselves".
     
    What is a Peer Wellness Coach?

    A peer wellness coach is someone who can help a peer to set and achieve a wellness or health goal by offering support and encouragement and asking questions to see what would be most helpful. A coach does not provide a prescription, wisdom, or advice, but rather helps a person seeking coaching to define what is important and set a plan to accomplish a personally valued goal.
     
    What is coaching?

    Coaching is not counseling or therapy; therefore a coach is not a therapist, counselor or mentor. Coaching does not require that you explore your past experiences or gain insight into the problem or challenge you encounter. Coaching is a positive supportive relationship between the coach and the person who wants to make the change. This positive supportive connection empowers the person seeking change to draw upon their own abilities and potentials so they can achieve lasting lifestyle changes. A critical aspect of coaching is self-responsibility. A person seeking coaching should accept responsibility for where they are in their own life, including their health. Through coaching, a person can determine what they are responsible for and become empowered to take the action to improve their wellness status, in terms of the many dimensions of wellness: spiritual, emotional, physical, occupational, financial, environmental, intellectual, and social.
     
    Why Peers?

    We believe that there are many possibilities for peers to contribute to the health and well being of people living with mental illness who are seeking support in pursuit of recovery. Wellness Coaching is a new opportunity for people in recovery seeking a career in the helping professions to explore….
    End of Article


    NYAPRS Note: At the September NYAPRS conference, Peggy Swarbrick will be joined by NYAPRS' Elizabeth Stone and our own new peer wellness coaches Erin Kennedy and Coleen Mimnagh, who'll be providing details of our work with Optum Health in Queens.

    See this featured presentation at this month's NYAPRS Annual Conference to be held September 16-8 at the Hudson Valley Resort in Kerhonkson, NY.
    August 24, 2009 - News of the Week

    CALIFORNIA DOUGHNUT SHOP AND MENTAL HEALTH ADVOCATES REACH A TRUCE

    For over four months, the Psycho Donuts shop in Campbell CA has amused its customers by pretending to be a 'fun-filled mental institution.' Advocates who protested the shop's 'fun' at their expense were not taken seriously. But now that's over. The owner is reported to be moving toward a music theme and presumably all psychiatric references will soon be replaced.

    The informative article below from Mercury News in San Jose CA was forwarded by Sarah Triano, an extraordinary advocate who is the director of the Silicon Valley Independence Living Center and a founding member of CAUSE (Community Alliance United to Seek Equality).

    Emailed August 24, 2009

    Dear CAUSE members (formerly FUSE),

    I am sending you an article from today's Mercury News covering our success with Psycho Donuts. This is the result of a lot of time, effort, hard work, skilled organizing, and persistence by you and the leaders within CAUSE (Community Alliance United to Seek Equality), the coalition formed as a result of Psycho Donuts. The biggest success of this, in my mind, is the coalition we've formed - a united, cross-disability coalition that is ready to take on stigma and discrimination against people with disabilities in other areas now!

    As the CAUSE t-shirts at our August protest/community rally said, "Disabilities are nothing to be ashamed of, but stigma and bias shame us all."

    Best,
    Sarah
    Sarah Triano
    Executive Director
    Silicon Valley Independent Living Center
    2306 Zanker Road
    San Jose, CA 95131
    saraht@svilc.org
    408-894-9041 (v)
    408-894-9012 (tty)
    408-894-9050 (fax)
    http://www.svilc.org/


    Article Source: Mercury News, San Jose CA

    DOUGHNUT SENSIBILITY
    By PATTY FISHER
    pfisher@mercurynews.com

    Posted: 08/23/2009 Updated: 08/24/2009

    It appears that sanity has come at last to Psycho Donuts. The place still has a crazy feel. The Bates Motel sign still welcomes visitors, and the doughnuts have names like "manic malt" and "coco kooks."

    But the "bipolar" and "severe head trauma" doughnuts are off the menu. The décor no longer includes straitjackets and a padded cell. Something else is missing: protesters.

    For the first time since the Campbell doughnut shop opened in March, mental health advocates aren't waving signs in the parking lot, complaining that Psycho Donuts' brand of zany humor was an insult to the mentally ill.

    All it took was one meeting, one face-to-face conversation, to bring peace to the corner of Campbell Avenue and Winchester Boulevard. The question is, why did that take so long?

    When I first visited Psycho Donuts in April, it was obvious that the owners didn't understand how offensive their mental-hospital theme was. It's one thing to make jokes about a Hitchcock film, but people who have been through shock therapy or spent time in a real padded cell wouldn't find the shop very appetizing. Making light of serious mental illness only contributes to the stigma, which makes it difficult for people to admit they need help and seek treatment.

    Hey, it's all in fun
    Yet when I tried to broach the subject with Kip Berdiansky, one of the original owners, he just kept saying it was all in fun. He refused to meet with local mental health groups to hear their concerns. While he insisted to me that he didn't want to offend anyone, he obviously was offending people and didn't seem particularly bothered by it.

    Perhaps he knew just what he was doing. The protests turned into a publicity gold mine for Psycho Donuts. All the local papers carried stories about the shop and the protests. They even made national TV. An op-ed piece criticizing Psycho Donuts appeared in USA Today. And while a lot of other businesses that started during the recession were struggling, lines were out the door at Psycho Donuts.

    Then, over the summer, Berdiansky sold his share of Psycho Donuts to his partner, Jordan Zweigoron. The first thing Zweigoron did was set up a meeting with the coalition of mental health groups. "The meeting started out pretty angry," he said, "but within an hour it went from contentious to a brainstorming session."

    A sign of good faith
    Coalition member Sarah Triano, who runs the Silicon Valley Independent Living Center, was relieved to finally have a chance to express her concerns. She called off the pickets. "We told him we would have a cooling-off period," she said. "Several of our members went down and bought doughnuts as a sign of good faith."

    Zweigoron wanted to get past the protests, which he said were a distraction. And he wanted to make Psycho Donuts reflect his own passion: music. The padded cell is now a mini music studio. There's a "mellow submarine" doughnut on the menu. And "massive head trauma," a tasty creation with a totally tasteless name, has become the "head banger," a nod to heavy metal fans.

    Zweigoron plans to keep talking with the advocates. "In the past few days everything has jelled and I couldn't be happier," he said. "The key point is: If you can keep a place fun and edgy without offending people, why in the world wouldn't you do that?"

    Makes sense to me. Then again, without all that free publicity, where would Psycho Donuts be today?
    End of Mercury News article

    Reprinted using Fair Use Doctrine


    July 26, 2009 - News of the Week

    WHY NOT CHANGE "PSYCHO DONUTS" TO "AMPUTEE DONUTS"?

    Kip Berdiansky, co-owner of Psycho Donuts in Silicon Valley CA, relies on a marketing strategy that mental health advocates find unacceptable. The shop attracts and amuses customers by poking fun at mental illnesses. Berdiansky sees his "lighthearted fun-filled insane asylum" as a fresh and creative way to sell doughnuts. My friend Tom disagrees. He suggests that to be more relevant and truly innovative, Kip should set up his doughnut shop as a hospital ward for treating people disabled by diabetes. Get rid of the shop's padded cell and straitjackets and change its name to something like Amputee Donuts. What could be more relevant than doughnuts and diabetes?

    When I first told Tom about Psycho's jelly-oozing donut named "Massive Head Trauma," he wept, then got angry. (Kip Berdiansky calls people like Tom humorless and over-sensitive.) Tom, a caring person, is in extreme pain. His wife had a near-fatal brain hemorrhage in April and she struggles hourly to regain her life. Although he may be partly right about Tom's sensitivity, Kip is just plain wrong when he claims he created a "fresh approach" to sell doughnuts. Doesn't he know that for decades, marketers of all kinds of commercial ventures have exploited psychiatric conditions? The huge success of Alfred Hitchcock's "Psycho" in 1960 spawned the Hollywood psycho-trough, a prolific source of absurd distortions of psychiatric conditions. The task of uprooting distorted images and replacing them with fair and accurate ones has fallen on the impoverished mental health community.

    Rampant stigmatization caused 20,000 stigmabusters to join the Internet-based stigma-fighting network of the National Alliance on Mental Illness (NAMI). While some progress has been made over the last 30 years to get rid of cultural prejudice against psychiatric disorders, Kip Berdiansky is a reminder of how much work remains to be done. Does he not know or just not care that the word "psycho" triggers an immediate association with violence? Against this backdrop, doughnut names like Massive Head Trauma, Malted Madness, Cereal Killer, and Bipolar take on ominous overtones. Posing straitjacketed children in a padded cell for a "fun" photo reveals a clueless mentality. A Harvard study in 1998 found that institutionalized children in straitjackets accounted for 25% of restraint-induced deaths. That study brought calls for nationwide reform.

    While Kip cashes in, people with psychiatric diagnoses suffer the pain of his marketing strategy. Would any other discriminated-against minority stand for it? No way.


    MORE INFORMATION


    June 11, 2009 - News of the Week


    PSYCHO DONUTS SPREADS STIGMATIZING MESSAGE TO COLLEGE CAMPUS

    Does a so-called fun doughnut named 'massive brain injury', decorated with oozing red jelly and a battered face really exist? Unbelievably, yes, in the small Silicon Valley town of Campbell CA.

    Since mid-March, the owners of Psycho Donuts have claimed their right to continue their sales gimmick of poking fun at psychiatric disabilities. The tiny shop is set up to be a 'fun-filled mental institution'. Children are especially welcome and are encouraged to pose for photos encased in a straitjacket in a padded cell. [Straitjacket games at home can be fatal.] Anyone who thinks this isn't 'fun' is labeled humorless. Critics of the shop, who from long experience know a demeaning message from a benign one (such as Patsy Kline's signature song "Crazy") are ridiculed. Those who suggest a choice of alternate themes are accused of aiming to destroy the shop's business.

    Recently the doughnut makers broadened the range of their stigmatizing message by taking it to a nearby college campus. Students have been recruited to peddle donuts they buy at wholesale. The implied message: ridicule of psychiatric vulnerabilities is socially acceptable at DeAnza College.

    Would any stigmatized minority quietly accept such harrassment? Kim Hing, a film student who has autism, has voiced her objections to the college administration and to public officials. So far the college has not dismissed her legitimate concern outright, but it is unclear whether she has been taken seriously. Explaining her objection to the doughnut's 'fun' diagnoses and decorations, Kim likened them to a doughnut covered with licorice and named 'nigger'. It's an apt illustration.
    MORE INFORMATION



    • Read Kim Hing's statement questioning the right to exploit psychiatric conditions for commercial gain.
       
      I am an Aspie, that's a nickname for someone who has been diagnosed with Asperger's Syndrome. It means I am on the autistic spectrum. I also have Major Depression, Anxiety, and ADD. I want to bring the following incident to your attention.

      I am taking a film class at DeAnza College in Cupertino, CA. The DeAnza Academy of Independent Filmmakers club on campus held an event recently which I attended. Marc Buckland was the featured speaker. He gave a great presentation with insights on directing and producing for TV. Following his presentation, the owner of a new local shop called "Psycho Donuts" took the stage. Apparently the club invited him.

      This man and his donut shop have stirred up huge controversy in Santa Clara County. This owner decided he wanted to make a "fun, themed restaurant where parents can take their children and not pay a lot."

      The theme is a mental institution. You can eat your donuts in the "Group Therapy Room" and have your children photographed in a real straightjacket in the shop's padded cell. The donuts have strange toppings, such as cereal and candy. Order your favorite - Bi-Polar, Massive Head Trauma, or any of the DSM IV psychiatritic diagnoses.

      Seriously, the owner thinks it is funny to name the donuts after mental illnesses. So why was this man on DeAnza College's campus? (DeAnza is a local community college.) He came to encourage students to send him short films with donuts in them that he will play on monitors at Psycho
      Donuts. He apparently has a channel on YouTube, as well. Also, he offered to help the students with fundraising by providing them Psycho Donuts at wholesale prices to sell on campus. He will even send over some "crazy doctors and nurses to help." (His employees wear doctor and nurses uniforms and lab coats.)

      Nice way of marketing, isn't it? Get the students to sell your donuts and you don't have to pay a dime. Never mind the effect it will have on students who have diagnoses. When I protested that it wasn't funny, I was told by an officer of the club to "stop disrupting the meeting." She also told me, "you're taking this too seriously." And when I persisted, she told me to "take it outside."

      I wrote the college's newspaper and my letter was published in it. My letter is starting to make the circuit to various organizations (by way of people forwarding it) such as NAMI (National Alliance on Mental Illness) and Silicon Valley Independent Living Center. I also wrote the San Jose Mercury News and my letter was published May 9.

      The local NAMI president e-mailed me the press-release that NAMI sent out on 4/28/09 about the impact this shop is having on the mental health community. He said I could e-mail it to anyone at the college. I e-mailed it to the film club members. The officer who told me to "take it outside" responded by asking if I also would have protested Jack Nicholson for his portrayal in a mental hospital. She wrote that she has visited mental hospital 3 times and was in special education. Her mother has bi-polar. She sees nothing wrong with the donut shop owner's "creativity" and says "this is a free country."

      Clearly there is a difference between "One Flew Over the Cuckoo's Nest" which dramatized the deplorable treatment of patients in mental hospitals of that era and the ridiculing of those with mental illnesses in the guise of "humorously" naming strange looking donuts after psychiatric illnesses and encouraging students to sell them on campus regardless of how students with diagnoses might feel.

      There is a federal law, ADA, that protects those with disabilities from discrimination at school. DeAnza College is funded by the State of California. I do not expect to be publicly humiliated and to have my disability ridiculed at a school sponsered event. While this is a free country, not everything that is creative is allowed at school.

      I am certain that if the owner covered a donut with black licorice and named it "Nigger", he would never have been allowed on campus.

      I do not feel I should be subjected to this at school.

      -Kim Hing
      Film Student

       
    End of statement

    __________________________


    • Visit the website of "What A Difference a Friend Makes." This is a ground-breaking campaign to address prejudice and discrimination on college campuses launched in 2008. It is a cooperative venture of the Ads Council and SAMHSA, the federal agency that oversees human resources.


    April 26, 2009 - News of the Week

    LANGUAGE MATTERS: WHAT DOES "TREATMENT" MEAN?
    Dr. Sally Satel asserted this week in a New York Times opinion piece that "treatment" for mental illnesses is the best way to fight the stigmas that plague the field. But how does she define treatment?

    Satel's article makes clear what the word "treatment" means to her. She applauds a current trend in treatment promotion by noting that "psychiatric medications are now routinely advertised on television." She is pleased that the military is taking steps to standardize "treatment" for combat stress disorders. Is she referring to a medicated approach which many veterans say does not work for them?

    Most mental health advocates consider housing and a network of community support services to be crucial to the successful treatment of psychiatic disorders. To our knowledge, Dr. Satel has never used her impressive public relations skills to advocate for programs such as the successful "housing first" program in New York and much needed veterans' counseling programs. Why?

    The pharmaceutical industry must love her.  
    MORE INFORMATION


    Link:
    Mental Health Needs are Stressing Out Veterans Administration by Lou Michel, Buffalo News, November 7, 2008


    Link:
    To Fight Stigmas, Start With Treatment by Sally Satel, M.D., New York Times, April 21, 2009


    April 19, 2009 - News of the Week

    WHEN DOES FREE SPEECH BECOME HATE SPEECH ?
    A few years ago, a lighthearted attempt at humor by a small group of firemen in Long Island NY caused public outrage. In a parade, the men tied an effigy of a black man to the back of their engine. When accused of racial bias, they claimed the protection of their right to freedom of speech.

    Will public outrage sensitize the lighthearted marketers of a jelly-filled doughnut they named 'massive head trauma' and decorated with a battered face and dripping red jam? Or has such crude exploitation become socially acceptable?

    Please read and circulate the eloquent letter below.

    April 16, 2009

    I am a disabled veteran from the 'Cold War' era. I was medically retired from the US Army after a training accident left me with a severe and permanent brain injury. I am speaking to the customers of "Psycho Donuts" in Campbell. Not only are these entepreneurs capitalizing on the backs of my fellow disabled veterans, but at the expense of all decent people who are sensitive to basic human rights and dignity.

    Imagine yourself as a lower-class citizen in England during the Middle Ages. Now see yourself as the court jester in the town square or a monkey on the shoulder of a clown meant to amuse the King. You feel the indignity of the spit, smirks and jeers, all day, every day. Switch to current day and substitute the jester and the monkey for brave veteran troops returning from Iraq ...with a severe brain injury from a roadside bomb or a rocket-propelled grenade.

    Twenty miles north from the Campbell donut shop, soldiers at the Palo Alto PolyTrauma Rehabilitation Center are struggling with a new, strange version of themselves, struggling with a brain that interprets colors, sounds, touch, voices and pictures in weird ways...and nobody can understand this new perspective...the only thing they know is they're alone and these changes will last forever. When they joined the military they didn't sign up for ridcule and the butt of public humor. They didn't expect a greeting like they are recieving from this seemingly harmless donut shop. But they did have a "Massive Head Trauma."

    Let's protect the dignity of our veterans ... let's not trivialize brain injury. It's so devastating, so permanent. One of their pastries is called "Massive Head Trauma" -- this is the kind of scorn that can send our wounded warriors and their families into a downward spiral of depression. We feel like outsiders as it is. All survivors of head trauma are embarrassed by this display. Veterans of all wars are disgusted. "Support our troops" is the vogue catch-phrase of our age...let's be true to our convictions.... Tell Mayor Kennedy and the Campbell City Council that language is a reflection of intelligence, and Campbell is developing a reputation of callous ignorance.
     
    Hardy Stone
    US Army Airborne Infantry
    USMA 1980
    Frederick, Maryland
    Reprinted with permission

    April 15, 2009 - News of the Week

    'PSYCHO DONUTS' TURNS BACK THE CLOCK

    Two Silicon Valley entepreneurs have discovered a cool way to market products. They opened a donut shop and turned it into a fun-filled insane asylum. The store teems with "lighthearted" ideas based on vulnerable human conditions. Favorites are wrapping children in straitjackets for fun photos, donuts with clever names like cereal killer, and a 'head-trauma' donut decorated with dripping red jam.

    What's wrong with mocking mental illnesses to sell products? Other stigmatized minorities (such as GLAAD - Gays and Lesbions Against Defamation) could answer that question easily. The mental health community is still not sure.

    Perhaps the extraordinary article below, reprinted from 2004, will help us to rethink our community's goals and how to reach them.

    April 18, 2004 - News of the Week
    A PSYCHIATRIC SURVIVOR NAMES BIGGEST CHALLENGE

    Source: Santa Cruz Sentinel, "Severe mental illness is a tiring challenge, every waking moment, every waking day. Do not dismiss this essay..."
    Biggest challenge of mental illness is the stigmatization

    By MAEL ANNE DINNELL
    April 18, 2004


    I belong to a community, a social class and a subculture that, by necessity, requires that I regularly be categorized for the purpose of treatment and concrete assistance.

    This is a community whose members are familiar with constant challenges and frequent anguish. People die frequently in this community, from suicide, drug overdose and physiological complications, which are the side effects of very powerful medications — side effects like tumors, heart problems, kidney failure, poor liver function, toxicity, etc.

    But for all these high prices, we in this community suffer most profoundly from stigmatization, derision, misunderstanding and discrimination that no other minority would allow to pass unchallenged. Paradoxically, the way we are included in society is by segregation, which we wearily (and necessarily) allow. We are the "mentally ill," the consumers in a system of a particular kind of care.

    I feel urgency, in the light of attempts by the governor of California to minimize and even cap our services, to address the larger society about what life is like for us. Severe mental illness is a tiring challenge, every waking moment of every waking day. Do not dismiss this essay at this point out of an ignorant conviction that we are lazy, crazy or unsalvageable. You stand to learn something about your fellow human beings.

    Segregating us allows for specific kinds of treatment the average citizen does not require, but it also engenders our dismissal. We are accused often of being dependent on the mental-health services that provide us with medication, living assistance, payees, programs, therapy and group support. But you would not judge a diabetic for being dependent on insulin, or the dependence of someone with kidney failure on dialysis. These things are matters of life and death to us, not only health and comfort. At some point we have been judged inappropriate enough often enough by society to warrant our assignment as members to this system, but at some point our functioning in it becomes relevant to the length and quality of our lives. There are many people in this society with fixed delusions or idiosyncrasies of thought and behavior that never get diverted into this system, and whose lives are not affected in terms of length or quality. The quality of our subjective experience (of ourselves and of the world) then becomes the most important aspect of being assigned to this system.

    The typical image of a mental-health client is one of a client in crisis. That is when the public notices us, and that is when we come to the attention of the police. These acute episodes are the subject of ignorant jokes and the reason for unquestioned prejudices.

    In actuality, most of the time we are not visibly distinguishable from you. But jokes and stereotypes at our expense occur regularly even in ultra-liberal Santa Cruz, and even in the alternative publications. Derisive references one would never dare to make toward blacks, for instance, or women, are commonplace and acceptable. Even now someone reading this is protesting that I am overly sensitive. I think not.

    We joke about or own behavior sometimes. But there is really nothing funny at all about the experience of serious mental illness. Coping with it requires an outstanding level of strength, willingness, motivation and commitment. Most people could not survive it; in fact, many of us don't. I, personally, thank God every day for the new generation of "atypical" psychotropic drugs; they have freed me from the nightmare of cognitive confusion, misperception and emotional deadness that I lived with for almost half a century, whether acutely or in relative remission.

    But I have paid a price for the use of the drug that changed everything for me: my body thermostat has been ruined and I suffer regularly from overheating and feverish states. This long-range effect was not known when I started on it. This is a typical example of the kind of trade-offs we are required to make in exchange for the blessing of being functional and feeling well.

    In spite of infighting, we emphasize our segregation by the inclusion of only each other in our social lives. Why should we struggle valiantly to blend in with and facilitate the rest of the people in society? We accept each other as we are and meet each other where we are. We do not have to constantly explain ourselves or strive for some vaguely understood kind of appropriateness or redeem ourselves for the sin of being subjected to a condition we can manage but not cure or control. We can live, work and socialize within a group in which each individual is faced with the same dilemma.

    It is trite and cliché to say, but the world itself is insane. World and local events are dominated by acts that are profoundly inappropriate — that is, inhumane — from genocide to child abuse and molestation to wars fought for the sake of territory and resources. It is almost amusing because the behaviors that find us relegated to the mental-health system (very early on in our lives) seldom involve violence against other human beings. As a group, we are no more violent than society at large; in fact, we are more likely to be victims of violence.

    Sickness and health are determined mostly on the basis of peculiarity — not a moral standard, not a measure of our respect toward the rights of others. To "fit in" — somewhere — is the more and the mantra in this society. It does not pay to stand out. And neither is it easy to stand out. Thus, our sub-community is open to those who do not belong, and closed to those who do.

    There is beginning to be movement in our community, as there has been for some time already in the ranks of the physically disabled, toward a kind of solidarity, political involvement and awareness that we represent an important voting bloc. My personal mission is to write and act toward the goal of not only establishing and maintaining concrete "patients' rights," but educating society at large about the image and the needs of the mentally ill — in all of their various circumstances, from life in the larger community to homelessness to institutions and facilities.

    I know without a doubt there are people who have read this far saying, "This cannot be a person with real mental illness, she is too logical and articulate." And this is precisely the point I have endeavored to make. We are talented, we are verbal, we are interested in things; we struggle with a handicap the majority of people don't have, but you make a grave mistake to dismiss and outcast us.

    In any case, we will be heard, and we are here.

    Mael Anne Dinnell is a Santa Cruz resident.
    Reprinted using Fair Use Doctrine

    March 22, 2009 - News of the Week

    'MENTAL HEALTH NEWS' SUMMER ISSUE WILL SALUTE RECOVERY AND THE CONSUMER MOVEMENT

    Ira Minot, the survivor of a serious mental illness, created
    Mental Health News in 2001 as a tentative educational project. Minot had endured a decade of disability caused by a condition he never anticipated and did not understand. As he began to recover, he vowed to turn a spotlight on the shadowy world of mental illnesses, often called "the last taboo." Mental Health News quickly expanded from its small base in New York to become a "source of information, education, advocacy and resources from the local, state, and national news scene." Published quarterly, current and back issues of Mental Health News are available online at http://www.mhnews.org/

    "Recovery and the Consumer Movement" is the topic for the Summer 2009 issue. The deadline for articles is May 1. For more information, see the announcement below (minus pictures) just received by email from Ira Minot.


    Mental Health News Summer Issue

    "Recovery and The Consumer Movement"


    a salute to the people and progams that are transforming our mental health care delivery system


    CALL FOR ARTICLES AND ADVERTISING

    Deadline: Friday, May 1st

    We Invite Your Participation

    Contact Us Today !!


    (570) 629-5960


    SPECIAL 25% ADVERTISING DISCOUNT FOR ALL PEER-RUN CONSUMER PROGRAMS
    TO HELP US SPOTLIGHT YOUR VITAL SERVICES FOR THE CONSUMER COMMUNITY
     

    Here Are A Few Suggested Article Topics Related to Our Theme:
     
    • Personal Stories: How My Recovery Has Helped Me Move On With Dignity & Pride
    • The Recovery Community: How My Peers Have Made A Difference in My Life
    • Peer Specialists: I Am Now Helping My Fellow Consumers in Their Recovery
    • Advocates: The Most Important Issues On Our Advocacy Agenda
    • Service Providers: How Our Programs Are Making A Difference
    • Service Providers: Helping Consumers Keep Their Family Ties Intact
    • Treatment Professionals: Recovery Oriented Treatment Principles

       
      Call Us With Your Idea for An Article !!
       
    Ira H. Minot, LMSW, Executive Director
    iraminot@mhnews.org
     
    Mental Health News Education, Inc.
    Your Award Winning Source of
    Evidence-Based Information, Education,
    Advocacy and Resources From The Local,
    State and National Mental Health and
    Autism Spectrum News Scene
     
    16 Cascade Drive
    Effort, PA 18330
     
    Mental Health News: http://www.mhnews.org/

    Autism Spectrum News:  http://www.mhnews-autism.org/

    ---------------------------------------------------------
    - End of Mental Health News announcement -

    Reprinted with permission


    March 1, 2009 - News of the Week

    "ANOTHER KIND OF VALOR" TEAM WILL VISIT COMMUNITIES

    As our service members return from the battlefields of Iraq and Afghanistan, greater numbers than anticipated are finding their homecoming clouded by mental health difficulties. Many search in vain for help, and news reports of family breakdown and suicide are mounting.

    But invisible wounds are easily ignored. Is it possible to raise the public's understanding of combat-related stress disorders? Can we prevent the tragedies that lie in store for too many veterans, their families, and their communities?

    Filmmaker Dan E. Weisburd and the California Institute of Mental Health have created an ambitious public awareness project, "Another Kind of Valor," designed to illustrate and explain the disabling effects of post traumatic stress disorder (PTSD). The video kit consists of 3 DVDs with nine powerful half-hour vignettes based on actual stories of battle trauma, plus a learning CD that serves both as a learner's guide and a facilitator's handbook useful for self-study or group discussions. The kit provides a powerful stimulus for discussion of problems that are affecting families and communities nationwide. (how to order)

    In addition, the VALOR team has scheduled "Learning Day" conferences in five cities, with more in the planning stages. Each conference will be tailored to the community's special needs, using the videos for illustration and guidance as needed. VALOR's "learning CD" will be augmented by local panelists that may include veterans, family members, mental health and substance abuse professionals, sheriffs, police, judges, medical providers, attorneys, civic leaders, and others selected by the conference planners and VALOR team.

    By evening, an ideal Learning Day will have given every voice due attention, and will find the community's leaders working together, equipped, inspired, and determined to find solutions to the unmet needs of its returning service members.

    In a review of "Another Kind of Valor" for http://www.miwatch.org/, Phyllis Vine, Executive Editor, notes that in the light of evidence of cavernous gaps in meeting the health needs of vets "it would be surprising if the next Congress failed to fund essential programs." Vine suggests, "Before deciding what action to take, elected officials should be required to see the docudrama "Another Kind of Valor."
    MORE INFORMATION


    February 1, 2009 - News of the Week

    BRITISH LAUNCH MULTI-MILLION-DOLLAR 'TIME TO CHANGE' CAMPAIGN

    Don't miss the inviting website! www.time-to-change.org.uk/

    Three British consumer-led organizations have united in a massive effort to defeat discrimination against people with mental illnesses. They are determined to get across the real story about mental health, told by those who know. The campaign will appear in 4-week phases over the coming months.

    The first 4-week phase is a straight-talking campaign which runs from January 21st and includes: 
    • Hard-hitting TV ad
    • Celebrity press ads featuring Stephen Fry, Ruby Wax and Alastair Campbell
    • Bold, uncompromising stunts to grab public attention
    • A string of high-profile supporters, from celebs to politicians
    • Press events

      The TV ad shows that being told to 'pull yourself together', being left out of things and treated as 'a problem' can lead people with mental health problems to despair – tragically for some, they just can't go on. TV viewers will be left in no doubt that the way they treat people with mental health problems like depression can make all the difference.

      'Time to Change' is run by leading mental health charities:
      Mental Health Media, Mind, and Rethink, and is backed by £16 million from the Big Lottery Fund and £2 million from Comic Relief.

      Each of these organizations is an established powerhouse. Their united website, www.time-to-change.org.uk/ offers a wide range of excellent resources.

    January 18, 2009 - News of the Week

    HOW 'WONDERLAND' WENT WRONG

    'Wonderland,' a television series said to depict an urban psychiatric emergency room, was cancelled nine years ago by ABC after only two episodes. Now, with a reprieve from satellite TV, all eight episodes of 'Wonderland' may be shown. The news opens old wounds.

    Wonderland's publicists in 2000 touted the show as gritty realism. But in fact, the show's inspiration was a special unit for forensic psychiatry where patients were judged to be "criminally insane." Mental health advocates who saw the two initial episodes were appalled by the shootings, stabbings, bizarre exaggerations and hyperactive pace. Former patients with experience in psychiatric ERs faulted the factual errors, lurid violence and nonstop chaos, and noted that while "doctors had complex lives, patients were a freak show."
     
    New York Times critic Bernard Weinraub wrote that in researching the series, writer/director Peter Berg spent nearly 7 months taking notes in a forensic unit at Bellevue Hospital in Manhattan. A Berg interview with Ariel Levy of New York Magazine points to Berg's fixation on atypical cases: "I divided my time between the maximum-security ward for criminals -- from Goldstein the subway pusher to a guy who swallowed a couple of batteries at Rikers in a suicide attempt -- and the psychiatric emergency program, in which people come in off the street or are brought in by the police or EMT."

    Berg, a multi-talented former actor, told interviewers he hoped to portray a psychiatric hospital more honestly than had ever been done before. But his result was over the top, even for a maximum-security ward.

    (The horror of a genuine psychiatric ER was caught on videotape this year when Esmin Elizabeth Green, after waiting for help for nearly 24 hours in the eerily quiet waiting area of Kings County Hospital psychiatric center in Brooklyn, collapsed to the floor and died. The video shows that as the hours passed, a few staff members or other patients wandered in and out of the room; finally someone prodded the body with her foot. Wonderland's contrived and stigmatizing horror is no match for reality.)


    MORE INFORMATION


    • Why did the mental health community protest Wonderland? Ellen Gray, a television critic for the Philadelphia Daily News, explains in an insightful article that begins,

    "Can there be anything worse for a critic than to fall in love with a piece of work and then find out that some fine people have very good reasons for hating it?" (read article...)


    • Readers looking for Wonderland background information will find eight postings in the NSC Archives. Scroll to February 27, 2000, the earliest Wonderland entry.


    • For a list of Wonderland reviews and articles, most with web links, email a request to stigmanet@webtv.net (j arnold)

    December 7, 2008 - News of the Week

    A LOOK BACK AT DUBIOUS JUSTICE

    Would A Jury Today Be More Enlightened?


    Nearly a decade ago, the year 1999 began in New York City with a senseless tragedy that shocked and saddened the city and dominated the news for months. On January 3, Andrew Goldstein, who had been discharged three weeks earlier from a psychiatric hospital with a one-week supply of medication, pushed Kendra Webdale, a lovely young aspiring writer, to her death under an oncoming train.

    The Treatment Advocacy Center in Arlington VA quickly declared Andrew Goldstein a "treatment resister" and made him a poster boy in their crusade for forced medication. Then on May 23 a different view of Goldstein emerged in a stunning cover story in the New York Times Magazine. The article exposed a trail of negligence - mixups, dead-end waiting lists, premature discharges - by the mental health facilities where Goldstein had repeatedly asked for the help he knew he needed. But by then, "treatment refuser" had become Goldstein's destined label.

    Latest update: in 2007 a third trial for Andrew Goldstein ended with a negotiated conviction for murder and a prison sentence of 25 years plus 5 years probation after release.

    A decade-old article below by Michael Winerip leads one to ask, Has the public become more aware of mental health issues since Goldstein's first jury trial in 1999?

    Another article reprinted below, The Railroading of Andrew Goldstein (2002) shows how justice was derailed.

    ARTICLE:
    New York Times
    November 21, 1999

    The Way We Live Now: 11-21-99; The Jurors' Dilemma

    By MICHAEL WINERIP


    While the jurors tried to figure out what, if anything, was going on inside Andrew Goldstein's head when he shoved Kendra Webdale to her death, we reporters stayed busy speculating on what was in the jurors' heads. Midway through the trial, during a lunch break, half a dozen of us were sitting around the courthouse press room eating our $3.50 tuna sandwiches from Lil's when a TV reporter cut right through all the expert psychiatric testimony. "I'd vote guilty," she said. "I'd want to make sure Goldstein goes away for a long time."

    That of course was not what the trial was supposed to be about. It was the jurors' job to decide whether Goldstein knew right from wrong when he pushed Kendra Webdale in front of the subway train or whether he was insane at the time, and thus not responsible for what he did. Was he once again in some sort of uncontrollable psychotic fog as he had repeatedly told psychiatrists in recent years each time he'd punched and shoved people? Or was he a budding Ted Bundy who craftily used his schizophrenia as a shield for his rage against women?

    If judged sane at that awful moment, Goldstein would be guilty of murder and most likely would serve at least 25 years in a state prison.

    If judged insane, he would go to a secure state psychiatric hospital. There he would be re-evaluated every two years to determine whether he was fit for discharge. And that, I believe, scared the hell out of many New Yorkers -- the possibility that Andrew Goldstein could be back on the streets in a few years' time. It was, to my mind, the prosecutor's secret weapon.

    At the start of their deliberations, the 12 jurors polled themselves. Five felt Goldstein was guilty of murder; three felt he was not guilty by reason of insanity; four were undecided.

    Hannah McCaughey, 32, a graphics designer, was among the undecideds. But as the days passed, she and most of the others switched to guilty. Partly, she said, it was because Goldstein had seemed more rational in his videotaped confession than she'd anticipated. "I would have expected him to seem more delusional," she said. "Like he thought Kendra was a green monster and her head was on fire and he was trying to put it out."

    But there was something else, several of them said in interviews, that kept eating at them, that they knew, as jurors, they were not supposed to consider, but that they could not help worrying about. "I was thinking, What happens if he's found not guilty by reason of insanity and gets out in a short time," McCaughey said. "I know we weren't supposed to talk about it, but I brought it up once myself. I said, "Let's talk about the ramifications of our judgment."

    "Having grown up in New York," she added, "I know that people don't stay in mental institutions very long. I thought to myself, How am I going to feel in a year or two or five when he's killed somebody else? The state's record is so bad -- it definitely had an influence on me."

    The truth is, if Goldstein was judged insane, he would probably spend as much or more time locked away. A 1995 study from the journal Law and Human Behavior looked at the cases of 526 New York defendants in criminal trials who claimed insanity; most of them, about two-thirds, were unsuccessful. But those who were judged insane actually wound up spending more time confined to psychiatric facilities than their guilty counterparts spent in prisons. Experts I spoke with agreed. Dr. E. Fuller Torrey [see footnote by ja], one of the nation's leading researchers on schizophrenia, has examined John Hinckley Jr., written a book on Ezra Pound and pushed for tougher commitment laws for mentally ill people resistant to treatment. But he has no doubt that if Goldstein was found insane, he'd be locked away for a long, long stretch: "In these high-profile cases, psychiatrists know the public is watching. Psychiatrists aren't particularly brave people. No psychiatrist is going to stick out his neck for someone like Goldstein. There's too much at stake."

    Even a veteran New York City prosecutor told me, "We generally don't have a problem with criminally insane people being released before we think they're ready."

    After the jury deadlocked, 10-2, and a mistrial was declared, the media focused on the biases of the two holdouts who felt Goldstein was insane. It is just as important to look at the biases of the majority.

    I am no bleeding heart. The primary victim here is not Goldstein but the Webdales. They've already been tortured twice this last year. They lost a beautiful daughter, and now, after forcing themselves to attend this gruesome murder trial every day for weeks, they will face it all over again at the retrial. And yet, because they labored to turn despair into something constructive, George Pataki this month, for the first time during his five years as governor, was shamed into offering significant new resources for the mentally ill.

    Still, Andrew Goldstein was also dealt a losing hand twice. First, by a mental-health system that refused his repeated requests for community care and long-term treatment, that kept dumping him back on the streets even though he'd attacked more than a dozen people in two years. When I first obtained his 10-year, 3,500-page record for the article I wrote in these pages last spring, I was amazed by how clearly a dysfunctional system was able to document its own failures.

    Knowing that 3,500-page record, can we really expect a juror who suspects that Goldstein was insane to have faith that the system will someday in the future correctly judge whether or not it is safe to release him? That is a lot of added pressure to place on a juror. It's the second bad hand dealt Goldstein: a psychiatric system that has lost the public's trust lowers the odds that a mentally ill human being will get evenhanded justice.

    Michael Winerip is a staff writer for the magazine. His last article was "Bedlam on the Streets."
    End of New York Times Article

    Reprinted using Fair Use doctrine




    • Footnote by J Arnold: Dr. E. Fuller Torrey is the chief proponent of forced psychotropic medication. In 1999, Dr. Torrey and his supporters labeled Andrew Goldstein a "treatment refuser" to influence the passage of Kendra's Law.


    MORE INFORMATION


    • ARTICLE: The Railroading of Andrew Goldstein by Patricia Warburg Cliff, The Journal of California NAMI V.11,1.3 (September, 2000)

      The failure of the legal profession, the court system and the public to grasp the vital concepts involved in the two trials of Andrew Goldstein further reinforce the fact that we at NAMI have much work to do.

      In January 1999, Andrew Goldstein, an unmedicated, delusional person with paranoid schizophrenia who had been unsuccessfully seeking help at various hospital emergency rooms, pushed Kendra Webdale to her death on the tracks of the New York City subway. Unfortunately the terrible tragedy of this young woman's death clouded public perception of the situation which allowed this to occur: the failure of the public system to offer the required state-financed housing with day services, clinic visits and an intensive case manager, to this seriously ill young man.

      It was, however, not the system which was on trial, but the other "victim" of this tragedy, Andrew Goldstein himself. The first trial ended in a hung jury, because two jury members had had some limited experience with the mental health system and consequently understood the nature of Goldstein's illness and his inability to form the necessary intent to commit murder in his psychotic state. The public's outcry for revengeful punishment did not, however, cease.

      In late February, 2000, a second trial was commenced. After hearing the evidence, the judge instructed the jury that they had the option of convicting the defendant of manslaughter in lieu of the second degree murder charges, if they found that he had acted with "depraved indifference," but without the requisite intent necessary for a conviction of second degree murder. It took the jury only two hours to reach the verdict of second degree murder.

      The irony of the situation should not be overlooked: Andrew Goldstein was being held at Bellevue Hospital following his arrest where he was willingly receiving treatment for his illness and consequently would not be able to appear sufficiently psychotic at his trial to demonstrate to the jury the disabling effect of this illness on his judgment. The defense pinned its hopes on taking Mr. Goldstein off his antipsychotic medication and putting him on the stand, to better show the jurors his mental state at the time of the attack. This novel concept was thwarted when Mr. Goldstein struck a social worker, further indicating his violent state of mind when unmedicated. Judge Berkman insisted that Mr. Goldstein be offered the choice of taking his antipsychotic medication, which he chose to do. The result was that the jury was able to see a passive, sedated individual and not the person whose delusions caused his violent behavior.

      NAMI's suggestions to the defense counsel to utilize the virtual reality videos produced by pharmaceutical companies which demonstrate the psychotic state of mind, as well as comparisons to the diminished capacity suffered by individuals who are experiencing the onset of a diabetic coma or an epileptic seizure, fell on deaf ears. The subsequent result demonstrates the ignorance of the judge, jury and defense counsel with respect to paranoid schizophrenia. Andrew Goldstein never got a fair chance.

      At the conclusion of the trial, the jurors were convinced that punishment, not treatment, was warranted. Mrs. Webdale, the victim's mother spoke at the sentencing hearing: "It is my contention that if Andrew Goldstein had been held responsible many incidents ago, there would not have been 13 assaults and one homicide committed by him. His ongoing aggression was tolerated and acceptable." The presiding judge concurred saying that the attack stemmed from the state mental health system's failure to punish Mr. Goldstein for past assaults.

      On May 5, 2000, Judge Berkman gave Andrew Goldstein the maximum sentence of 25 years to life in prison for the murder of Kendra Webdale. What is wrong with this picture? Has the "justice system" reverted to a witch hunt to punish the violent mentally ill whom the public system has dismally failed? Are we, as a society, going to be content with the gross misunderstandings of mental illness which were demonstrated in this trial? How are we going to educate the judiciary about these issues?

      The ultimate irony is that the New York State legislature, ever reluctant to provide sufficient funding for treatment for the mentally ill, hastily passed a bill, commonly referred to as "Kendra's Law," allowing for court ordered treatment or commitment of the mentally ill under certain circumstances. Andrew Goldstein who is now rotting in the state prison system, had tried repeatedly to get help before the attack. He even sought his own commitment when he realized that he was out of control. The misnomered "Kendra's Law" would not have prevented this tragedy.

      PATRICIA WARBURG CLIFF, an attorney and mental health advocate in New York City, serves on the national board of NAMI as well as on the board of NAMI-NYC Metro. Her only child, Kenneth Johnson, succumbed to depression in 1995, as a result of the private health care system's failure to adequately diagnose and appropriately care for his illness.
    End of article


    Reprinted using Fair Use doctrine


    November 21, 2008 - News of the Week

    'ANOTHER KIND OF VALOR' CAPTURES TORMENT OF STRESS DISORDERS IN VIDEO VIGNETTES

    An Audience Discussion Guide is Included to Promote Public Awareness


    For details and order information, click http://www.cimh.org/Learning/Publications-DVD/Another-Kind-Of-Valor.aspx

    Will the grateful American public provide our returning war veterans with the help they need to cope with combat-related stress disorders and brain injuries? The public first needs a basic understanding of these challenging conditions. To bridge the gap in public understanding of wounds that are disabling but invisible, the California Institute for Mental Health (CIMH) has released 'Another Kind of Valor', an outstanding set of videos that is both deeply moving and a powerful stimulus for discussion of problems that affect families and communities nationwide.

    The CIMH video kit consists of 3 DVDs with nine powerful half-hour vignettes based on actual stories of battle trauma, plus a learning CD that serves both as a learner's guide and a facilitator's handbook useful for self-study or group discussions.

     
    RELATED INFORMATION


    Returning to civilian life from combat is almost always a hard road to run. Studies have shown that a third of G.I.'s returning from the combat zones of Iraq and Afghanistan - more than 300,000 men and women - have endured mental health difficulties.


    • A quote from David W. Gorman, Executive Director of Disabled American Veterans, praising Another Kind of Valor and its creator, filmmaker Dan E. Weisburd.
    While most Americans can empathsize with the challenges faced by veterans suffering from physical injuries and disabilities, it is often more difficult for civilians to comprehend the complex emotional and psychological problems confronting veterans suffering from post-deployment mental health issues - or the invisible injuries of war - such as post-traumatic stress disorder, depression, and traumatic brain injury. By bringing these stories to life through the docu-drama format, Another Kind of Valor helps to foster awareness, discussion, and understanding of the struggles our disabled veterans and their family caregivers face, and contributes to the development of a more supportive encironment in which they can begin to heal and recover from the wounds of war.

    • The article below typifies a growing trend. It underscores the urgent need for public action on behalf of men and women returning from Mideast battlefields.
    MENTAL HEALTH NEEDS ARE STRESSING OUT VETERANS' ADMINISTRATION

    War Veterans Seeking Help In Record Numbers

    By Lou Michel
    Buffalo News
    November 7, 2008


    Dana Cushing is a disabled veteran who is supposed to receive an hour of counseling each week through the Buffalo VA. But she shares that hour of a psychologist's time with 15 others in group therapy. "So you have 60 minutes divided by 15 people. That's four minutes apiece, and that's not going to help," Cushing said.

    She is not alone.

    Returning war veterans are seeking help for depression, anger and other mental health problems in record numbers in Buffalo Veterans Affairs Medical Center and similar hospitals around the country.

    The most common treatment is medication. In fact, the number of prescriptions given to local [Buffalo] veterans to help them with mental problems has increased from about 1,700 seven years ago to almost 8,000 in the 2007-08 fiscal year.

    The problem is that medicine, on its own, does not teach the veterans how to cope. That is why a campaign is under way to enlist psychologists and other mental health providers to work with war veterans.

    There's just one catch. There's no pay. It's volunteered time. Not a lot. Just one hour a week. "We're appealing to the social and moral conscience of behavioral providers in the community to reach out and offer one hour per week," said Thomas P. McNulty, president of Mental Health Services of Erie County. "Soldiers and their families deserve nothing but the very best from our community."

    The need is pressing and will continue to grow, according to Barbara Van Dahlen Romberg, national founder and president of Give an Hour. "I hear from some veterans that it is difficult to get immediate appointments and frequent appointments," she said.

    The effort here and in other states comes at a time when more federal money is pouring into the Department of Veterans Affairs to treat psychologically injured veterans. Critics say there is too much emphasis on medication and not enough on counseling. Antidepressants top the list of medicines prescribed to returning Iraq and Afghanistan veterans at the Buffalo VA, which has spent more than $2 million on psychiatric medications since 2001.

    E-mails to Romberg from the loved ones of veterans across the country often express concern that the vets are "primarily receiving medications and not enough counseling," she said. A volunteer force of psychologists is "nimble and fluid" and can fill in the gaps as needed, Romberg said.

    The demand for counseling is expected to continue to increase as more veterans return home, McNulty said. To date, an estimated 1.6 million service members have spent time in Iraq or Afghanistan. "What we're hearing is that the wave of veterans returning will put undue stress on the current system, and new resources must be identified to meet that need," he said, adding that he is working with VA employees who cannot be faulted for the growing demands.

    And, McNulty says, it's not only veterans who need the care. Their family members, children especially, need counseling to cope with extended absences caused by multiple deployments. "Let's say the mom is the one in the service, and mom's not home two years. The kids feel bad. They've lost two years. Then mommy, or daddy, returns from the war into a home that is already stressed by their absence," McNulty said. "In addition, there's the issues the soldier brings home."

    There are others, as well, who could benefit from the planned local chapter of Give an Hour. Consider Army veteran Christopher Simmance. Over the last two years, the City of Tonawanda man says he has seen four or five psychiatrists and is awaiting assignment of a new one. "My old psychiatrist quit in May. He told me he couldn't stand how the VA was treating vets. He gave me a bunch of refills," said Simmance, who developed post-traumatic stress disorder several years after serving in a Middle East international peacekeeping force.

    Medication alone, the vets say, doesn*t heal. Yet it is a big part of their treatment. And while the VA's mental health staff might appear sufficient in number to treat the more than 2,000 new war veterans [from Buffalo] of the last several years, these men and women are not the only ones who rely on the VA. Each year, the Buffalo VA treats more than 40,000 veterans, who are all entitled to care from its 11 full-time psychiatrists and 70-plus psychologists, social workers, addiction therapists and part-time mental health workers.

    Working with McNulty to launch the local volunteer effort a few weeks from now is Christopher M. Kreiger, a disabled Army veteran, who suffered traumatic brain injuries serving in Iraq and post-traumatic stress. "I've been out trying to push to see if psychiatrists would be willing to donate an hour a week to a veteran in need who cannot get it at the VA," Kreiger said. "Even the staff that works at the VA says there's a shortage."

    Rather than sit at home and complain, Kreiger, of the Town of Tonawanda, says working to help fellow veterans has helped him. "The more I get into it, the more my problems don't seem so big," he said, explaining that idle time is a big problem for psychologically wounded veterans. "I just sit at home. I just watch TV," Simmance said. At one point, he said the VA wanted to assign him to a foreign-born psychiatrist. He refused, claiming his overseas military experiences would make it difficult for him to open up to that particular doctor.

    Simmance said he consumes up to four prescription drugs a day for his post-traumatic stress. Bret Mandell, an Army veteran who has seen action in Iraq and Afghanistan, described similar experiences in dealing with the VA, adding that he has taken up to seven different medications for post traumatic stress. "Every time I went up there, they kept switching me around to different people, and I couldn't get a good relationship with anyone to where it benefited me," Mandell said of the VA.

    Tracy Kinn, a New York State veterans counselor, says vets need to be proactive if they want to secure VA services. "They work for us, but they are very overworked," said Kinn, a former Marine. Veterans who don't take a proactive approach, she said, may wind up only with medications and "without the care."

    Jeremy Lepsch, a psychologically disabled Marine from North Tonawanda, said he has noticed progress in the level of VA care. "It seems they've talked to the staff because everyone seems a lot more friendly and caring," Lepsch said. The VA also has enhanced its day treatment facility on Main Street at Hertel Avenue, describing it as a "psycho-social rehabilitation recovery center," according to Buffalo VA spokeswoman Evangeline Conley. "We're learning and modifying the programs based on current needs and what seems to be best for veterans," Conley said.


    End of Buffalo News Article


    Source:
    http://www.printthis.clickability.com/pt/cpt?action=cpt&title=Mental+health+needs+are+stressing+out+VA&expire=&urlID=32281567&fb=Y&url=http%3A%2F%2Fwww.buffalonews.com%2Fhome%2Fstory%2F486523.html&partnerID=173606

    Reprinted using Fair Use standard

    November 9, 2008 - News of the Week

    IT CAN BE DONE! Peer Counselors Become Agents of Recovery
    ARTICLE:
    Note on language: readers may prefer to substitute the terms "people with psychiatric disabilities and substance use disorders" instead of "the mentally ill and drug addicts."

    Philadelphia Agency Is Rolling Out A Model For Clients, Including Addicts, With Emphasis On Recovery

    By Don Sapatkin  Philadelphia Inquirer  October 9, 2008


    Recalling Philadelphia's roots as a medical innovator dating to colonial times, city officials outlined yesterday what they described as sweeping changes - some completed, others envisioned - in the treatment of drug addicts and the mentally ill.
     
    Over the last several decades, scientific advances have dramatically improved the lives of the mentally ill, many of whom are also addicted to drugs and sometimes homeless. But those discoveries have not always guided government programs across the nation that are intended to help.
     
    "The question is how do we reorganize our system to deal with the realization that people get better?" said Arthur C. Evans, director of the Philadelphia Department of Behavioral Health and Mental Retardation Services.
     
    At a news conference yesterday at a community mental-health center, Evans said some recovering addicts were being trained as peer counselors, allowing them to use their experiences to help others in similar straits. By paying the peer counselors, the program serves another need - getting people back on their feet and staying connected, as opposed to what has been described as the treat-them-and-drop-them approach.
     
    Evans described the new longer-term model as the most sweeping change in the field since hundreds of thousands of mentally ill people were released from institutions during the deinstitutionalization wave of the 1970s.
     
    The changes, which will be phased in over the next two or three years, will be accommodated in his department's $1.4 billion budget, Evans said, noting that peer counselors are not paid like doctors.
     
    The speakers made a point yesterday of describing their new approach as "recovery" rather than "treatment."
     
    Among them was Robert D. Martin, 42, who said he had bipolar disorder and was addicted to crack and living on the streets of Center City in the late 1980s and early '90s. Early in this decade, he said in an interview, his treatment in "partial programs" - "you sat for eight hours a day, then were sent back on the street" - gave him "a glimmer of life."
     
    In mid-2007, just as some of the rethinking was being implemented at Evans' agency, two weeks of intensive training taught Martin how to support recovering addicts, how to run groups, and how to teach people the skills that most Americans take for granted, such as applying for Social Security cards and preparing to go back to school.
     
    He got a job as a peer counselor and has since been promoted. He moved from the street to a shelter to the three-bedroom house he now rents with his wife of two years in Logan. And he just traded in an old clunker for a 2006 Nissan Maxima.
     
    "I'm living life again," Martin said, sitting outside the news conference at the Philadelphia Recovery Community Center at 1701 W. Lehigh Ave.
     
    The site is the first of several planned centers that will offer a range of support groups, counseling, education and social events in communities.
     
    In general, Evans said, the changes that he calls "recovery transformation" - but that may be known to professionals elsewhere as "recovery-oriented systems of care" - are supported by research.
     
    When he was a deputy commissioner of mental health and addiction services in Connecticut, Evans implemented what was described as the first such comprehensive effort, and when he arrived several years ago in Philadelphia, he set about doing the same thing.
     
    "Over the years, it has become clear that people with addiction problems also have other mental-health issues," said Joe Troncale, medical director of the Caron Foundation near Reading, a leading addiction treatment center.
     
    Troncale had no direct knowledge of the changes in Philadelphia but said the integrative or holistic model that was described to him appeared to be the direction in which behavioral health was heading.
     
    Philadelphia, he said, had been known as a leader in humane mental health services going back to the beginning of the nation, when Dr. Benjamin Rush sought to classify forms of mental illness and wrote the first American textbook on psychiatry.
    End of Article

     
    Reprinted using Fair Use doctrine
    Source: NYAPRS Enews


    MORE INFORMATION


    ___________________________________

    EDITORIAL
    New York Times
    November 7, 2008
    GOOD NEIGHBORS


    New York City pioneered the strategy of providing homeless people not just with housing but with drug treatment, psychiatric care and other services they need to live successfully on their own. Even with all the add-ons, supportive housing apartment buildings cost substantially less than shelters and are many times less expensive than jails or beds in psychiatric hospitals.

    This strategy is taking root all over the country and proving beyond a doubt that people who were once homeless can be good neighbors and good citizens. Unfortunately, many neighborhoods are continuing to fight the developments, believing that they bring down property values. A long-awaited study from New York University's Furman Center for Real Estate and Urban Policy should put an end to that misperception.

    The study examined the sale prices of apartment buildings, condominiums and individual homes in New York City neighborhoods where 123 supportive housing developments were opened between 1985 and 2003.

    Fear seems to have suppressed property values somewhat while the new developments, which often replaced vacant lots or eyesores, were being built. But that evaporated once people saw the buildings and how well they were run.

    In the five years after the developments were opened, the study finds, the prices of buildings nearest the supportive housing development experienced "strong and steady growth," and appreciated more than comparable properties that were slightly farther away. In other words, the closer property owners lived to these often handsome developments, the better they fared.

    The Furman study confirms what advocates have been saying for years: well run supportive housing can help both formerly homeless citizens and the neighborhoods in which they are built. Politicians and business leaders across the country should pay attention.
    End of New York Times Editorial

    Reprinted using Fair Use doctrine

    October 26, 2008 - News of the Week

    IT CAN BE DONE!

    Neighbors and Civic Organizations Join With Advocates to Develop Housing Opportunities

    Massive institutions on Long Island in NewYork once warehoused tens of thousands of people with psychiatric vulnerabilties. When deinstitutionalization began to sweep the nation in the 1970s, wave after wave of patients were dispersed from Long Island's institutions to fend for themselves. Many sought refuge with families who searched in vain for needed services. Many others ended up on the streets of local communities with no housing or supportive services -- impoverished, homeless, with deteriorating health.

    By 1990, community care had become a bitter broken promise. As a result, throngs of destitute patients across the nation are now in jails and prisons for illness-related offenses. The U.S. Dept. of Justice reported in 2006 that more than half of all jail and prison inmates had symptoms of a mental health disorder.

    In sharp contrast...

    As early as 1972, a Long Island group called Concerned Friends and Parents of Central Islip State Hospital began to meet in Suffolk County. The group grew, evolved, and was renamed Concern for Independent Living. This active, creative group has just celebrated the opening of its latest outstanding housing project (see News item for Sept. 30 below), increasing their creation of apartments to appproximately 550.

    An article from 2006 describes how community cooperation turned a seemingly doomed project into a success.
    ARTICLE source: http://www.concernhousing.org/pollackgardens/Journal-Page9.pdf

    ARTICLE

    NEIGHBOR OF THE YEAR:
    Town of Islip and the West Sayville Civic Association, Neighbors of Pollack Gardens, a project of Concern for Independent Living.


    In many areas, local civic associations and community boards provide the
    primary opposition to developing new affordable housing (emphasis added by by NSC).

    But in the case of Concern for Independent Living's Pollack Gardens, an outstanding new supportive residence in West Sayville, Long Island, the project would not have moved forward without the help and support of the West Sayville Civic Association (WSCA) and the Town of Islip Community Board.

    After hearing about the proposal to build Pollack Gardens, Brendan McCurdy, President of WSCA, didn't object; instead he called Concern to learn more about both the agency and the program. He brought the information back to WSCA and convinced its members to support the project, a ground up, gut rehabilitation conversion of a run-down adult home. His wife Maura updated neighbors about the progress of the project through the WSCA newsletter, expressing the view that supportive housing would be a positive addition to the community.

    Equally important, the Town of Islip Community Board played a critical role in cutting through red tape to save the project's tax credit funding. Three months before the funding deadline, it was discovered that part of the property needed to be rezoned to get site plan approval. This process normally takes more than nine months.

    Everyone said it was impossible to secure the necessary approvals in only three months and the project appeared doomed - everyone except Eugene Murphy, Planning Commissioner, and Hope Larson, who was then the Director of the Building Department.
     
    The Town of Islip scheduled an emergency Town Board meeting one day before the deadline, something that had not been done in at least 25 years.

    Ten minutes after they unanimously passed the resolution, Hope Larson — who happened to be dressed as Wonder Woman for Halloween — issued the building permit. The very next day, Concern for Independent Living closed on the tax credit financing five minutes before the deadline.

    The building opened a little over a year later, where it now provides a wonderful home to fifty individuals with psychiatric disabilities, thanks to the community leaders of West Sayville and Islip. The Network is pleased to honor Mr. McCurdy, Mr. Murphy and Ms. Larson as the Network's 2007
    Neighbors of the Year.
     
    -End of Article-


    Reprinted using Fair Use doctrine

    September 30, 2008 - News of the Week

    IT CAN BE DONE!

    Former Adult Home Undergoes Transformation in NY
    ARTICLE: http://www.27east.com/story_detail.cfm?id=170539

    New Psychiatric Rehabilitation Center Opens In Riverhead
    By Jessica DiNapoli   Southhampton Press   September 30, 2008

        
    The building at 260 West Main Street features beautiful artwork, crown molding, high ceilings and a well-equipped gym. These luxurious amenities would suggest that the building is an apartment complex or a hotel found in New York City.
     
    But the newly renovated facility is actually located in downtown Riverhead and owned by Concern for Independent Living Inc., a not-for-profit housing agency that offers permanent shelter for those who are recovering from psychiatric disabilities. The facility, called Concern Riverhead, has been in operation since June and offers its 50 residents apartment-style living as each single-occupancy room comes with its own bathroom and kitchenette.
     
    The residents of Concern Riverhead range in age from 18 to 60, and either have low-income jobs or are homeless, explained Elizabeth Lunde, the associate director of Concern for Independent Living. The Medford-based organization runs similar facilities across Suffolk County and, at the present time, provides housing for approximately 550 people.
     
    The Riverhead facility celebrated its official grand opening with a ribbon-cutting ceremony last Thursday, September 25, that was attended by local government officials and representatives of the mental health field.
     
    Concern for Independent Living purchased the building, which was constructed in 1929 and formerly known as the Henry Perkins Hotel, four years ago. From the 1970s until 2004, the building housed the Henry Perkins Adult Home, a facility mostly known for its dilapidated condition.
     
    For the past three years, Concern for Independent Living has invested close to $15 million in renovating the building, with construction commencing in August 2007. Work was completed on the facility in June.
     
    The money for the extensive renovation came from three sources, explained Steve Piasecki, the upstate coordinator for the Supportive Housing Network of New York, a housing advocacy organization. Mr. Piasecki said the New York State Office of Mental Health, the Federal Home Loan Bank and the Community Preservation Corporation all contributed to the project.
     
    "We absolutely improved the facility," Ms. Lunde said. "We want our places to look like apartment buildings or hotels because the folks rise to the level of their surroundings." She noted that there are staffers at the facility 24 hours a day, seven days a week.
     
    As part of the renovations, Concern for Independent Housing restored the historical architecture of the first floor of the building, including the pediments, and added office space. The agency gutted the second, third and fourth floors of the building, which now house 50 apartments.
     
    "It was a warren of old rooms from the old hotel," Ms. Lunde said. "The Henry Perkins Adult Home ... kept almost everything from the old hotel."
     
    Ms. Lunde noted that there might have been some renovations completed in the adult home in 1920s, shortly after the structure was built.
     
    When Concern for Independent Housing acquired the building in 2004, there were still 120 people living there as residents of the Henry Perkins Adult Home, explained Ms. Lunde. The not-for-profit helped relocate those residents to other mental health facilities in the area before embarking on their renovation plan, she said.
     
    Riverhead Town Supervisor Phil Cardinale, who attended last week's ceremony, said the Henry Perkins Adult Home was "not a positive for the Town of Riverhead." He emphasized during the event that the home, which had been cited by the state for a variety of violations, was poorly managed prior to its closure.
     
    As Ms. Lunde explained, the pristine interior of the Concern Riverhead facility is designed to help improve the mental health of its residents.
     
    "It's nice, it's clean," said Sharon Francis, one of the 50 residents of the facility. "The staff is nice and helpful." Before moving to her new home in downtown Riverhead, Ms. Francis said she received treatment at the Buckman Center at Pilgrim Psychiatric Center in Brentwood.
     
    The Main Street location is also convenient for residents as they are within walking distance of many small shops and a bus stop, according to Ms. Lunde. Ms. Francis noted that she takes the bus by herself when she has to run errands.
     
    Christopher Betts, the vice president of the Albany-based Community Preservation Corporation, said the former adult home that once occupied the building had been a blight on the community for years. He said the former facility provided substandard housing to its residents.
     
    Mr. Betts added that the recent renovations to 260 West Main Street are not only an investment in the building but in the surrounding community. "Supporting projects like this has a positive impact on property values," he said.
     
    Town officials agreed that the new facility, one of the first buildings that greets drivers who are traveling east on Route 25 in Riverhead, improves their overall impression of the downtown area, which has seen a number or retail stores close shop in recent years following the shuttering of Swezey's Department Store.
     
    "It's a great building to greet everyone," said Riverhead Town Councilman John Dunleavy.
     
    "The restoration of the site is wonderful," Mr. Cardinale added.
     
    And elected officials were not the only ones to agree with that assessment.
     
    "Once upon a time this was a rundown adult home," said William Polchinski, a therapist at the Peconic Center on East Main Street in Riverhead, an outpatient clinic of the Pilgrim Psychiatric Center. "But Concern made it beautiful and it absolutely affects people's mental health."
     
    http://www.27east.com/story_detail.cfm?id=170539
     
    End of Article


    ___________________________

    Source: NYAPRS ENews

    Reprint protected by Fair Use Standard

    July 21, 2008 - News of the Week



    DR. TORREY'S SHORT MEMORY

    E. Fuller Torrey is no ordinary psychiatrist. His success at attracting publicity is legendary. His questionable statistics are accepted by the media. His made-up statistic concerning 1,000 annual homicides commited by people with untreated mental illnesses made the Congressional Record. The National Stigma Clearinghouse file is thick with Torreyisms that have appeared in the national media and elsewhere.

    Most recently, a muddled Torrey statement charged that "as our readers are well aware, changes in state commitment laws have made it impossible to treat nearly half of discharged patients after they have left the hospital." (see Link below) Torrey's seeming amnesia about his activities over the past 15 years is disconcerting. In 1993, his newly-created Treatment Advocacy Center (Psychlaws.org) launched a fearmongering crusade to make outpatient commitment easier nationwide. Now, nearly every state has a law that permits involuntary outpatient commitment to psychiatric treatment. The catch: There are far too few resources to treat involuntary or voluntary patients.

    Psychlaws' strategic use of fear to gain public support may have backfired. Their dire warnings and an obsessive focus on violence may have had an unintended consequence. A study by Corrigan et al (Psychiatric Services, May, 2004) found that such tactics produce a negative effect on public attitudes and less willingness to provide resources. The system backup we now see -- hospitals overcrowded with patients ready for discharge with nowhere to go, and long waiting lists for community housing and programs -- could be fallout from Torrey's successful campaign to change the laws.

    Torrey has spent fifteen years crusading for an untested concept that over-relies on medication alone. Meanwhile his charismatic domination of the mental health scene has slowed progress toward more viable solutions. The good news: Although Torrey denigrates all who disagree with him -- actually denying the citizenship of consumers/survivors/ex-patients in the subtitle of his latest book -- his dismissive behavior may have fueled the burgeoning consumer/survivor movement. The first-hand experience of this group has become a boon to the mental health community.


    MORE INFORMATION

     
    Go to http://www.miwatch.org/ for a Book Review by Sue E. Estroff of Dr. Torrey's latest book
    The Insanity Offense: How America Fails the Seriously Mentally Ill and Endangers Its Citizens, and What We Must Do to Stop It
     
    Go to http://www.psychlaws.org/ for an announcement of Dr. Torrey's book. Top of home page, click Read More

    For earlier news postings, click here, then scrolll down to News Items



    THE FEDERAL CENTER FOR MENTAL HEALTH SERVICES OFFERS A FREE EDUCATIONAL RESOURCE: CHALLENGING STEREOTYPES: AN ACTION GUIDE - a 32-page booklet with directories. For a free copy call 1-800-789-2647. Available ONLINE at http://www.mentalhealth.org/stigma/pubs.asp, publication SMA-01-3513

    The mass media wield a powerful influence over public opinion. It is essential that the news media are challenged to be fair and accurate, and that the mass entertainment media meet standards of fairness when using the public's communication channels.

    At stake is the public's understanding of what are known as "mental illnesses." A 1990 survey of public attitudes sponsored by the Robert Wood Johnson Foundation concluded that "Mass media is, far and away, the public's primary source of information about mental illness."

    There is an inexpensive and direct way to combat stereotyping. It is not the only way (perhaps not even the best way), but it is effective and often leads to further dialogue with members of the community and key representatives of the media. The method is a "smoking gun" approach; it addresses misrepresentation head on, explains the damage done, and offers alternative ways of portraying mental illnesses to the people in charge. When the media get it right, praise and honors should reward the extra effort.

    Like members of the public, many media professionals have limited knowledge about mental illnesses. Stereotypes become self-perpetuating unless they are replaced by clear, credible alternatives. If mental health activists fail to speak out, we resign ourselves to the status quo.

    Most people, and particularly media people, have a natural curiosity about what they don't understand. Seek to build good relationships with journalists and other media professionals by being informative and reliable. Let members of the media know you respect their intention to be fair and accurate.

    For a copy of CHALLENGING STEREOTYPES: AN ACTION GUIDE (32-page booklet), call 1-800-789-2647 and ask for publication #SMA 01-3513.

    When you call, ask for a list of other excellent educational resources offered by the federal Center for Mental Health Services, a division of the Substance Abuse and Mental Health Services Administration.
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